Well I’m going to do one of those short cuts again. I am going to copy over an article that I wrote for Jay Klein’s class – University of Phoenix. It is a social work class, mostly done online, and my articles and comments on their discussion will be posted next week. This is probably the fourth time that I have done this class with Jay in this way.
Jay and I go back to the mid 80’s. As luck or life would have it Jay has run into many barriers in the university systems that he has been part of – three in all. This has brought him to building a partnership with some techno folks who happen to be interested both in Inclusion and in video games. It’s just possible that we are going to be able to mount a research project to study the impact of our video game on the inclusive behaviour of the players. All very academic, I know. It may however give me my chance – finally – to run the BMX Model of Inclusion through some real life experiences by real people to see if it’s useful as a descriptor and predictor of inclusive situations. If it IS then there is a real basis to build forward action from a solid researched base.
I know many who read this wouldn’t care that much. However, money tends to follow the researchers and studies are often used to back people who have a chance to make a real change. I think we deserve to have a chance at this kind of position, so I am going to continue to go for it.
Here is the article:
Hello
Some of you will already have a good sense of who I am, from the course materials, Google and/or You Tube. We will probably never meet in person and be a part of each other's real world. In a way I wish we could meet face-to-face so I would get to find out who you are and what you would really like to know from and about me. Just the same this is a wonderful way to have a dialogue from one country (Canada) to another. I am hopeful that you and I will get very engaged in this activity.
Here are my opening thoughts.
In our language we speak of relationships as if they were things we have, or don't have. We say things like: "I have a car, two cats and five relationships." In reality relationships are what we are. I am one person with my mother, a somewhat different person with my father, a very different person with my best friend, yet another different person with my boss, and so on. There is no "I" that exists alone - solitary. I am a being that is revealed in the context of other "I's".
We also speak about disability as if it were a thing. We say things like: "I have an apartment, a computer and a disability." This is just as misleading as saying I "have" relationships.
Disability is not real in a concrete sense. Disability can only exist where people have a social agreement about the way some people's bodies and/or minds exist in the world. In particular the culture "already knows" that there are ways that people should never be in their bodies, minds and emotions.
Anyone who knows someone well who has been labeled disabled has had the experience of the disability disappearing. That is, in certain environments and under some conditions the same person with the same abilities will go from seeming to be odd and needy to seeming to being very recognizable and capable. The same person suddenly is OK and "just like me really except a little different."
Creating a world where diversity is appreciated and fostered – creating Inclusion – is much more than doing and saying some things differently. Inclusion is a philosophy, a belief system. Inclusion is about having the world be a place where everyone's abilities matter and are built into everything that is happening in the social and economic community. In inclusive society everyone is a contributor. The whole range of ability is seen as capacity.
If we come to truly believe in Giftedness – that is that difference leads to opportunities that can benefit everyone – then we must notice that some actions and some language works against opportunity and participation and some support it. The language and actions related to the idea of disability work against Inclusiveness and Giftedness.
The good news is that we don’t need the concept of disability at all. With some work, self reflection, dialogue and change of action disability as a concept and as a practice can disappear.
When disability disappears it is because something about a person's usual and unusual differences has become a contribution to the social and economic network of relationships. When people experience that difference leads to capacity they welcome the broad range of skills and abilities that can occur among human beings.
This week the course invites you to look at diverse capacity as a natural part of being alive in relationship. People who have been labeled disabled bring both usual and unusual capacities to the networks of relationships that make up our communities.
Please watch the video, “Working with Judith Snow”. Please read the three attached articles: "Prologue and "The Story" (Prologue.pdf)", "Community Is Not A Place But A Way Of Life", (Community.pdf), and "Notes On The Gifts And Assets that People Who Are Vulnerable To Rejection Commonly Bring To Community" (Gifts.pdf, see below)." After absorbing these three please communicate your thoughts, reactions, questions, disagreements, and points of agreement via this threaded discussion.
Here are some suggestions to help start your discussion. You could discuss:
1) Your initial thoughts or reaction.
2) What made you feel good and what bothered you?
3) What is the message about the power of relationships and of language?
4) What is being expressed that is relevant to you and the work that you do?
5) What is the message of Inclusion?
6) What will you do differently after this week of study?
I am looking forward to interacting with you.
Have a great course.
Judith Snow
Gifts Document:
NOTES ON THE GIFTS AND ASSESTS
THAT PEOPLE WHO ARE VULNERABLE TO REJECTION
COMMONLY BRING TO COMMUNITY
Judith A. Snow, MA
January 2011
Hospitality
• making people feel happy
• listening
Grounding
• slowing people down, reorienting people to time and place
• leading people to appreciate simple things
• causing people to appreciate their own abilities
Skill Building
• pushing people to be better problem solvers
• causing people to try things they've never done before
• causing people to research things they never encountered before
• improving education
• improving technology
• modeling perseverance - being unstoppable
Networking
• reaching out to people and breaking down barriers
• asking questions that everyone else is too shy to ask
• bringing people together who otherwise would never meet
Economic
• providing jobs to people who want supplemental income, like artists
• providing jobs to people who need to work odd schedules like homemakers
• providing jobs to people who otherwise have few or no marketable skills
• filling odd niches
• providing a home, bringing people home
Emotional/Spiritual
• often modeling exemplary forgiveness
• offering opportunities to do something that clearly makes a difference
• reorienting values from accumulation to relationships
• making people more peaceful
Showing posts with label model. Show all posts
Showing posts with label model. Show all posts
Tuesday, February 1, 2011
Sunday, January 30, 2011
January 30, 2011
It’s probably going to be a short one tonight. Just about three quarters of an hour ago Helen texted that she’s sick and doesn’t want to work tomorrow. Nick and I spend the next 40 minutes sorting it out. Not bad really! But it means that it’s bedtime and this blog loses its fascination!!!
Just the same, it is important to CELEBRATE! We found the money. I am going to Savannah, although perhaps not for the full two weeks. We’ll see.
It was simple enough really. Today I sold the trailer to Rob and Michelle Comtois. Instead of coming to me it is going to Mike so that he can set up the travel arrangements and pay himself. With the amount of money that we have raised we can pay another personal assistant. The lodging is free until February 26, so we should be OK. If I am able to earn some more money somewhere, all the better. It will mean that we can stay for a few days into March and pay for an ocean view hotel on Tybee Island for a few days.
My intention is to finish the “Dirty Window” painting. Doing it in Toronto, one hour a week at a time, which is usually all the time I get at Laser Eagles these days, will not have it finished in time to make it a centre piece of the ROM exhibit. (It looks like it’s going to be scheduled for August.) In Savannah, I am hoping to finish it within the two week period and then begin to build other materials around it, like a story, some posters, and perhaps other paintings related in theme.
My though is that by making the prison assembly a central theme in my exhibit, I can create a dance between Inclusion from the “disability” perspective and Inclusion from other diversities and their gifts.
Mike and I had some intense conversations this last weekend. It is good! I am stretching to explain – with compassion I hope – not only what it takes to create Inclusion but also what it takes to be a creator of a concept which can shift the world. Of course, what do I know about shifting the world? However, I have some very solid experience about what doesn’t shift the world. In fact, this is something of a dilemma for me. I have a natural gift of what is not working, and this is very useful sorting out and leaving behind strategies that are less effective. However, it is not very engaging for partners in the work and also it doesn’t actually create a new direction.
On the other hand, I think I have been very creative around building new directions. I am just saying that I have to struggle with myself not to communicate too much negativity.
I am in a very different space than I was a month ago. Even then I was in a very different space from where I was at a month before that. It feels like acceleration – exponential growth. For heaven’s sake, Mike and I were using Fractal theory to describe a model of inclusion should look like. I haven’t even thought about fractals for 10 years and I have utterly forgotten the names of the terms that are relevant. Yet somehow it is as if all the powerful things that I have ever learned are congealing into one large attempt to put Inclusion on the map. So be it.
Just the same, it is important to CELEBRATE! We found the money. I am going to Savannah, although perhaps not for the full two weeks. We’ll see.
It was simple enough really. Today I sold the trailer to Rob and Michelle Comtois. Instead of coming to me it is going to Mike so that he can set up the travel arrangements and pay himself. With the amount of money that we have raised we can pay another personal assistant. The lodging is free until February 26, so we should be OK. If I am able to earn some more money somewhere, all the better. It will mean that we can stay for a few days into March and pay for an ocean view hotel on Tybee Island for a few days.
My intention is to finish the “Dirty Window” painting. Doing it in Toronto, one hour a week at a time, which is usually all the time I get at Laser Eagles these days, will not have it finished in time to make it a centre piece of the ROM exhibit. (It looks like it’s going to be scheduled for August.) In Savannah, I am hoping to finish it within the two week period and then begin to build other materials around it, like a story, some posters, and perhaps other paintings related in theme.
My though is that by making the prison assembly a central theme in my exhibit, I can create a dance between Inclusion from the “disability” perspective and Inclusion from other diversities and their gifts.
Mike and I had some intense conversations this last weekend. It is good! I am stretching to explain – with compassion I hope – not only what it takes to create Inclusion but also what it takes to be a creator of a concept which can shift the world. Of course, what do I know about shifting the world? However, I have some very solid experience about what doesn’t shift the world. In fact, this is something of a dilemma for me. I have a natural gift of what is not working, and this is very useful sorting out and leaving behind strategies that are less effective. However, it is not very engaging for partners in the work and also it doesn’t actually create a new direction.
On the other hand, I think I have been very creative around building new directions. I am just saying that I have to struggle with myself not to communicate too much negativity.
I am in a very different space than I was a month ago. Even then I was in a very different space from where I was at a month before that. It feels like acceleration – exponential growth. For heaven’s sake, Mike and I were using Fractal theory to describe a model of inclusion should look like. I haven’t even thought about fractals for 10 years and I have utterly forgotten the names of the terms that are relevant. Yet somehow it is as if all the powerful things that I have ever learned are congealing into one large attempt to put Inclusion on the map. So be it.
Saturday, January 22, 2011
January 22, 2011
I am about to prepare the proposal that I will put before the ED of the Atkinson Charitable Foundation (ACF). I recognize that I have a highly emotional response to her request of me. Clearly I am reactivated (or stuck) at more than one level! So, I thought that I would use this blog – this expression vehicle – as a way of writing her a personal letter. Then I could write her the straightforward proposal. I can also suggest that, if she is interested, she read the blog, although that seems pretty risky at the moment. Of course it couldn’t seem so risky if I didn’t feel that much depends on how my working relationship with her turns out, and what each of us is able to accomplish by working together.
I am sure that this is just the sort of thing that Gloria wants me to face and transform in the context of. She is always saying I can’t give anything away, as in permitting others to run with the ball after I have set a direction. I don’t think this is true but I do recognize that I am not the best judge! So these are the words I would say to the new ED who is curious about me, maybe even hopeful about me, and who holds the key to what my next project will look like, perhaps.
Dearest O,
(It always seems that such letters start with “Dear” or “Dearest”)
I have been struggling with how to frame a project to put before you by Monday morning. Saturday evening is about to arrive and I only have the barest outline in my head. I am frustrated, angry and hopeful. I am trained enough to know that I’m not really responding to you, but to a series of former relationships and opportunities both lost and fulfilled which have shaped my life, my understanding of Inclusion and my current “mission” in life. It seems to me that you are interested and that you hold a key to potential progress. However, both my sense of what is a key and what progress is leave me with a feeling that you have undue power over me at this moment. I am reacting to my own “helpless identity” in the face of your “power”.
In the eyes of the world, you are black and I am crippled. We spoke euphemistically about these realities last Wednesday. I explained to you that my relationship to this point with Atkinson has been as a “window washer” – in other words, my circumstances have lead me to a certain kind of work in the world and consequently people imagine both that this is the kind of work I want to do and also that it is the only thing I’m good for. Accordingly, when people want to include me, support me and/or honour me, they offer me another window to wash. This is exactly what I FEEL like you are doing now.
I have been so tempted to ask you if you would like to make some pancakes.
Specifically, I stopped wanting to be an advocate in approximately 1991. I took it up again in order to support the Individualized Funding Coalition of Ontario. In 2004 we were offered an opportunity to “consult” with the Deputy Minister of the Ministry of Community and Social Services in Ontario. I participated fully! I did so because, even though I figured there was very little chance that the work would lead to real policy change, I felt that there needed to be as good as possible a document that recorded for history the benefits of individually supported community participation for people who are labelled with developmental disability.
It is nearly impossible, as you know I am sure, for people to build full participation with minimal resources, including some that are illegally established. Secondly, this power is further diminished by the intense bureaucratic overlay that comes with these resources. Add to this the intensely inadequate capacity to do good research when all that is available to do the work are volunteers, no control group, no standard definition of anything, and tight deadlines to come up with data and analysis. In spite of this, the IFCO managed to produce two reports that each had “eyeball” significance. In other words, you could see by just looking at the data that there are huge differences in how people who have individualized supports participate in their communities versus people who have agency support.
Shortly after we produced this data, the Finance Ministry of the Province of Ontario shut that Deputy Minister down, had him reassigned, and put in place an ineffective puppet. All evidence that the government might move towards individualized support for people who are labelled with developmental disability disappeared overnight.
The hidden consequence of all this, at least hidden to the Ministry, the bureaucrats and well meaning people such as yourself is that the people themselves who are labelled lose at every step of this process. First of all, they lose relationship with their parents and caregivers as these people exhaust themselves with extra work, and the process of being drawn into defining their loved one as a needy disabled person. Secondly, they lose the opportunities that disappear while their caregivers are busy doing other things rather than going out to the library, the park, a volunteer job somewhere, church, etc. etc. Finally, as the bureaucrats dash the hopes of the advocates and burn them out, they lose the energy and commitment of their parents and caregivers – the main source of support in their lives. How many people end up in a worse situation and in group homes just because their parents became advocates and then burnt out? I have no idea what the number is but I am sure that it is not small.
I was not, I believe, turned into a cynic by this defeat, not just because I was expecting defeat but because I knew that people could not be satisfied unless they had tried, and try we did. My intention was to support the effort as best as I could, not imagine that we were somehow going to buck the bureaucracy and actually make a change. At the same time I very much intended to never pick up the banner of advocacy again!
Lo and behold one should never say never! Here comes a very energetic, intelligent and passionate ED who is more than willing to make pancakes. Who am I to say that she is not correct? History has funny turns and I am not the one to say that this is not the time in history when a new voice and new energy might actually shift the social perception of people who have been labelled developmentally disabled.
You remind me so much of an energetic and passionate woman that I met in 1978 who turned my life, and many people’s lives, around. I hated her for a good six months before I fell in love with her and proceeded to do anything she asked of me because somehow around her things really worked out. For example, although we are far from having genuine Inclusive education in Ontario, the bureaucrats have never been able to kill it either, and that has a lot to do with Marsha Forest, who so inspired and so kicked butt that her influence continues 11 years after her death from breast cancer. I can only hope to have such power as Marsha had.
So, you say, it is time to gather the advocates and to have them start talking to each other and to have them begin to create a common identity and a common approach. Do you know that that is exactly what Marsha inspired in our city in 1980 to support our powerful engagement with the system during 1981, the International Year of the Disabled Person? The impact of that conference reverberates to this day in small but fundamental ways.
I can hear Marsha’s voice saying quit your bitching and get writing. This is an opportunity not to be missed.
Alright then – Let’s get on with it! Where’s that pancake recipe?
I am sure that this is just the sort of thing that Gloria wants me to face and transform in the context of. She is always saying I can’t give anything away, as in permitting others to run with the ball after I have set a direction. I don’t think this is true but I do recognize that I am not the best judge! So these are the words I would say to the new ED who is curious about me, maybe even hopeful about me, and who holds the key to what my next project will look like, perhaps.
Dearest O,
(It always seems that such letters start with “Dear” or “Dearest”)
I have been struggling with how to frame a project to put before you by Monday morning. Saturday evening is about to arrive and I only have the barest outline in my head. I am frustrated, angry and hopeful. I am trained enough to know that I’m not really responding to you, but to a series of former relationships and opportunities both lost and fulfilled which have shaped my life, my understanding of Inclusion and my current “mission” in life. It seems to me that you are interested and that you hold a key to potential progress. However, both my sense of what is a key and what progress is leave me with a feeling that you have undue power over me at this moment. I am reacting to my own “helpless identity” in the face of your “power”.
In the eyes of the world, you are black and I am crippled. We spoke euphemistically about these realities last Wednesday. I explained to you that my relationship to this point with Atkinson has been as a “window washer” – in other words, my circumstances have lead me to a certain kind of work in the world and consequently people imagine both that this is the kind of work I want to do and also that it is the only thing I’m good for. Accordingly, when people want to include me, support me and/or honour me, they offer me another window to wash. This is exactly what I FEEL like you are doing now.
I have been so tempted to ask you if you would like to make some pancakes.
Specifically, I stopped wanting to be an advocate in approximately 1991. I took it up again in order to support the Individualized Funding Coalition of Ontario. In 2004 we were offered an opportunity to “consult” with the Deputy Minister of the Ministry of Community and Social Services in Ontario. I participated fully! I did so because, even though I figured there was very little chance that the work would lead to real policy change, I felt that there needed to be as good as possible a document that recorded for history the benefits of individually supported community participation for people who are labelled with developmental disability.
It is nearly impossible, as you know I am sure, for people to build full participation with minimal resources, including some that are illegally established. Secondly, this power is further diminished by the intense bureaucratic overlay that comes with these resources. Add to this the intensely inadequate capacity to do good research when all that is available to do the work are volunteers, no control group, no standard definition of anything, and tight deadlines to come up with data and analysis. In spite of this, the IFCO managed to produce two reports that each had “eyeball” significance. In other words, you could see by just looking at the data that there are huge differences in how people who have individualized supports participate in their communities versus people who have agency support.
Shortly after we produced this data, the Finance Ministry of the Province of Ontario shut that Deputy Minister down, had him reassigned, and put in place an ineffective puppet. All evidence that the government might move towards individualized support for people who are labelled with developmental disability disappeared overnight.
The hidden consequence of all this, at least hidden to the Ministry, the bureaucrats and well meaning people such as yourself is that the people themselves who are labelled lose at every step of this process. First of all, they lose relationship with their parents and caregivers as these people exhaust themselves with extra work, and the process of being drawn into defining their loved one as a needy disabled person. Secondly, they lose the opportunities that disappear while their caregivers are busy doing other things rather than going out to the library, the park, a volunteer job somewhere, church, etc. etc. Finally, as the bureaucrats dash the hopes of the advocates and burn them out, they lose the energy and commitment of their parents and caregivers – the main source of support in their lives. How many people end up in a worse situation and in group homes just because their parents became advocates and then burnt out? I have no idea what the number is but I am sure that it is not small.
I was not, I believe, turned into a cynic by this defeat, not just because I was expecting defeat but because I knew that people could not be satisfied unless they had tried, and try we did. My intention was to support the effort as best as I could, not imagine that we were somehow going to buck the bureaucracy and actually make a change. At the same time I very much intended to never pick up the banner of advocacy again!
Lo and behold one should never say never! Here comes a very energetic, intelligent and passionate ED who is more than willing to make pancakes. Who am I to say that she is not correct? History has funny turns and I am not the one to say that this is not the time in history when a new voice and new energy might actually shift the social perception of people who have been labelled developmentally disabled.
You remind me so much of an energetic and passionate woman that I met in 1978 who turned my life, and many people’s lives, around. I hated her for a good six months before I fell in love with her and proceeded to do anything she asked of me because somehow around her things really worked out. For example, although we are far from having genuine Inclusive education in Ontario, the bureaucrats have never been able to kill it either, and that has a lot to do with Marsha Forest, who so inspired and so kicked butt that her influence continues 11 years after her death from breast cancer. I can only hope to have such power as Marsha had.
So, you say, it is time to gather the advocates and to have them start talking to each other and to have them begin to create a common identity and a common approach. Do you know that that is exactly what Marsha inspired in our city in 1980 to support our powerful engagement with the system during 1981, the International Year of the Disabled Person? The impact of that conference reverberates to this day in small but fundamental ways.
I can hear Marsha’s voice saying quit your bitching and get writing. This is an opportunity not to be missed.
Alright then – Let’s get on with it! Where’s that pancake recipe?
Wednesday, January 19, 2011
January 19, 2011
The awaited meeting with the ED of Atkinson Charitable Foundation happened this morning. I was able to organize that Mike Skubic was with me and, much to the ED’s amazement, he and his work on the inclusive video games was very exciting to her. It turns out that she has encountered the Zombie Walk movement, and the whole idea that zombies could be a vehicle for experiencing and teaching Inclusion was a welcome eye-popper. I was a little bit jealous. My whole stuff around the BMX Model of Inclusion is way more serious, significant and unfun!
Afterward, Mike and I had lunch and considered deeply her request. Fundamentally, she is offering both of us a partnership, and some space to invent what that partnership will look like. I am sure I don’t fully understand what she is offering or what her request is. By the end of the meeting I was struggling a bit to shift gears and so lost track of some of what she was saying. Basically, I have been working hard in a certain direction for the last few months and had not seriously considered Atkinson as a "playground". I am more than willing, even thrilled, to work with Atkinson. It's just unexpected!
I am hoping that because of this I can use the BMX Model to work with members of the Inclusion Circle, the Community Advocates that Atkinson funds, the ED herself, and any Atkinson Board members who wish to participate. I want them to describe their personal and organizational situations and issues and to describe strategies they might like to use to move forward.
After, say, six months we could collect the stories and thoughts and together look at where the model is and isn't useful. This will help to tighten up the model or debunk it if it is genuinely useless. Lastly, it might (FINALLY) create a way to connect with the work being done around the Canadian Index of Wellbeing - a result I have been trying to achieve for about three years!!!!
I am thankful to Mike for pushing me beyond my own cynicism. Atkinson has done very little with the Inclusion Circle, and neither did the Laidlaw Foundation before that. It seemed to me that advising these philanthropic organizations created the same kind of exclusion that advocacy does, i.e. it’s just another by-product of M. So my first reaction to her enthusiasm was to get confused and wonder what the heck I could do that would make any difference to what I am entrusted in. By the end of lunch a pathway was much clearer.
By the way, the work of the last week has required me (and us) to articulate the BMX Model more succinctly so here it is:
The BMX Model of Inclusion was created by Judith Snow, WPIT, www.judithsnow.org. It is designed to succinctly capture the multitude of circumstances that people call Inclusion. Its elements are “B” (for Basic), “M” (for Mechanical), and “X” (for Crossover).
At a most Basic level, a country or community allows a group to coexist, but no other changes are offered or made for the group. In the “M” or Mechanical state, the community is willing to make accommodations for the included group—examples might be ESL classes, job training, etc. In the third, Crossover state, both the community and the included recognize that their world benefits from the gifts and contributions of everyone. The perception fades that there are two sides and a distinct boundary. Any human difference can be looked at this way.
The model is useful for more than description. Communities and individuals can use it as a way of analyzing their situations and determining powerful strategies for finding better placement as participants and contributors in their society.
So, yet again, I have a new departure. Like Gloria, I worry that this is an utter waste of time. However, I think I must try this, because after all, supporting and rescuing people one person at a time is just another way of ensuring that basic change never happens.
I am not saying that I know how to make the basic transformation of society happen. I am saying that I am willing and able to keep looking for that way.
Afterward, Mike and I had lunch and considered deeply her request. Fundamentally, she is offering both of us a partnership, and some space to invent what that partnership will look like. I am sure I don’t fully understand what she is offering or what her request is. By the end of the meeting I was struggling a bit to shift gears and so lost track of some of what she was saying. Basically, I have been working hard in a certain direction for the last few months and had not seriously considered Atkinson as a "playground". I am more than willing, even thrilled, to work with Atkinson. It's just unexpected!
I am hoping that because of this I can use the BMX Model to work with members of the Inclusion Circle, the Community Advocates that Atkinson funds, the ED herself, and any Atkinson Board members who wish to participate. I want them to describe their personal and organizational situations and issues and to describe strategies they might like to use to move forward.
After, say, six months we could collect the stories and thoughts and together look at where the model is and isn't useful. This will help to tighten up the model or debunk it if it is genuinely useless. Lastly, it might (FINALLY) create a way to connect with the work being done around the Canadian Index of Wellbeing - a result I have been trying to achieve for about three years!!!!
I am thankful to Mike for pushing me beyond my own cynicism. Atkinson has done very little with the Inclusion Circle, and neither did the Laidlaw Foundation before that. It seemed to me that advising these philanthropic organizations created the same kind of exclusion that advocacy does, i.e. it’s just another by-product of M. So my first reaction to her enthusiasm was to get confused and wonder what the heck I could do that would make any difference to what I am entrusted in. By the end of lunch a pathway was much clearer.
By the way, the work of the last week has required me (and us) to articulate the BMX Model more succinctly so here it is:
The BMX Model of Inclusion was created by Judith Snow, WPIT, www.judithsnow.org. It is designed to succinctly capture the multitude of circumstances that people call Inclusion. Its elements are “B” (for Basic), “M” (for Mechanical), and “X” (for Crossover).
At a most Basic level, a country or community allows a group to coexist, but no other changes are offered or made for the group. In the “M” or Mechanical state, the community is willing to make accommodations for the included group—examples might be ESL classes, job training, etc. In the third, Crossover state, both the community and the included recognize that their world benefits from the gifts and contributions of everyone. The perception fades that there are two sides and a distinct boundary. Any human difference can be looked at this way.
The model is useful for more than description. Communities and individuals can use it as a way of analyzing their situations and determining powerful strategies for finding better placement as participants and contributors in their society.
So, yet again, I have a new departure. Like Gloria, I worry that this is an utter waste of time. However, I think I must try this, because after all, supporting and rescuing people one person at a time is just another way of ensuring that basic change never happens.
I am not saying that I know how to make the basic transformation of society happen. I am saying that I am willing and able to keep looking for that way.
Monday, January 10, 2011
January 10, 2011
Last week I required no Morphine for 4 of 7 days. Jen today and last week did strong work on my right upper thigh – the scene of 5 surgeries. It is tough sledding for both of us but clearly a big difference is showing up. At the same time I feel more stoned than if I were on the full dose of Morphine I was using when I first came out of the hospital in mid-October. The treatments, the Vivex elixir, the better quality food I have been eating and, I think, just getting closer to life essentials are together spinning the energies I call “me”.
I have had “Epiphany” a lot on my mind lately, and I suppose this is only natural as this phenomenon is culturally located in early January. I understand the Epiphany to name the experiential intersection of history and eternity, of the ever disappearing Now and the timeless spirit from which all being springs forth. Today Jen was getting at Epiphany from a very different set of metaphors – a mix of Chinese or Eastern understanding of the body, her father’s Mastery of Reiki and her own empathy.
I was bathed in the experience of being sourced from and through a deep, blue well, and, at the same time, understanding as a direction to follow that a person in her physical self has a Yin energy fire that must stay lit for body life to continue. Ordinarily we nourish this fire through breath, food and water, but there are other, more essential, paths to stoking the flame. I have long been fascinated by those who have given up eating or breathing for months or years. Today I got a sense of what that takes, though Jen says it requires enormous focus.
The rest of the day, before and after, has mainly been about the ordinary here and now. I got lots done and there is much I did not do. Mostly I am OK with that since in some sense it is not about doing, but about manifesting, in any case.
Still, as skilled a manifestor as I am, it is not yet clear enough how to tell the difference between magical thinking and having life occur – in Now – through being rather than doing. Today I saw, and I spoke it to others, that when we make a promise we must also create an integrity that will support the fulfillment of that promise. Out of this structure failure can be useful and powerful. However, without a created integrity, our promises have no more power than hope has.
Now I wrote all that in Landmark jargon. You can get how my metaphors and energies are jumbled right now. I am sure they will reorganize in some strong way in short order!
Today I completed my preparations to talk policy change with the Executive Director of Atkinson Charitable Foundation, Olivia Nuamah this Wednesday. It seems to be an important meeting. I feel that my perspective is very different from hers, yet this is likely something she respects and finds creative. Somehow the Inclusion Circle has dissipated and many of Atkinson’s key players have moved on. Atkinson now has a new Chair and ED, and the long term community developer and most recent Economic Fellow both have taken jobs more in the City of Toronto realm.
Perhaps there is space for my efforts and thinking.
I have had “Epiphany” a lot on my mind lately, and I suppose this is only natural as this phenomenon is culturally located in early January. I understand the Epiphany to name the experiential intersection of history and eternity, of the ever disappearing Now and the timeless spirit from which all being springs forth. Today Jen was getting at Epiphany from a very different set of metaphors – a mix of Chinese or Eastern understanding of the body, her father’s Mastery of Reiki and her own empathy.
I was bathed in the experience of being sourced from and through a deep, blue well, and, at the same time, understanding as a direction to follow that a person in her physical self has a Yin energy fire that must stay lit for body life to continue. Ordinarily we nourish this fire through breath, food and water, but there are other, more essential, paths to stoking the flame. I have long been fascinated by those who have given up eating or breathing for months or years. Today I got a sense of what that takes, though Jen says it requires enormous focus.
The rest of the day, before and after, has mainly been about the ordinary here and now. I got lots done and there is much I did not do. Mostly I am OK with that since in some sense it is not about doing, but about manifesting, in any case.
Still, as skilled a manifestor as I am, it is not yet clear enough how to tell the difference between magical thinking and having life occur – in Now – through being rather than doing. Today I saw, and I spoke it to others, that when we make a promise we must also create an integrity that will support the fulfillment of that promise. Out of this structure failure can be useful and powerful. However, without a created integrity, our promises have no more power than hope has.
Now I wrote all that in Landmark jargon. You can get how my metaphors and energies are jumbled right now. I am sure they will reorganize in some strong way in short order!
Today I completed my preparations to talk policy change with the Executive Director of Atkinson Charitable Foundation, Olivia Nuamah this Wednesday. It seems to be an important meeting. I feel that my perspective is very different from hers, yet this is likely something she respects and finds creative. Somehow the Inclusion Circle has dissipated and many of Atkinson’s key players have moved on. Atkinson now has a new Chair and ED, and the long term community developer and most recent Economic Fellow both have taken jobs more in the City of Toronto realm.
Perhaps there is space for my efforts and thinking.
Thursday, January 6, 2011
January 6, 2011
I need to draft some stuff for the Executive Director of the Atkinson Charitable Foundation so I thought I’d start here.
The task is to equip her with enough compelling analysis and evidence in two hours so that she can activate her Board to take action on their Inclusion agenda.
What can the Board actually do to empower Inclusion? Their focus is on policy change. Where would policy change actually make Inclusion more likely to occur?
What would Inclusion look like? According to the BMX model:
- B – easier, more expected, even facilitated access for “targeted” individuals and groups to claim a space with little or no interaction required
- M – person centred and individualized services, citizen and economic development focus replaces welfare, charitable and health approaches
- X – broad recognition that everyone has differences that can foster interaction, relationship and so social and economic opportunity AND that the very characteristics that get turned into symptoms and excuses for labelling are potential for interaction, relationship and so social and economic opportunity
What happened to developing a common literacy about Inclusion.
To make the leap one must understand “Giftedness” – that is that gifts are anything you have, are or do that creates an opportunity for interaction and that interaction is fundamental to relationship and so social and economic opportunity. All differences are gifts.
Anyone who believes that either they themselves or anyone else is not what they should be already is in a trap.
Tell some stories.
Explain my organization bases and my history. Explain that recreating the same sort of organizations as already exist will automatically exclude most people who are labelled.
Excluded people LOOK like they are not contributing. This is a structural limitation.
Hospitality is a powerful stimulation for Basic Inclusion. What happened to revolutionary lunches?
Economics and Inclusion? We already said uneven labour market practices were founded in social exclusion. There is an inseparable link. This is a POLICY issue.
How ACF spends its money, and currently, if ACF spends its money, is a mark of its true values. In terms of X Inclusion, withholding its resources totally indicates no willingness to enter into genuine dialogue with those whose citizenship remains unexpressed.
The task is to equip her with enough compelling analysis and evidence in two hours so that she can activate her Board to take action on their Inclusion agenda.
What can the Board actually do to empower Inclusion? Their focus is on policy change. Where would policy change actually make Inclusion more likely to occur?
What would Inclusion look like? According to the BMX model:
- B – easier, more expected, even facilitated access for “targeted” individuals and groups to claim a space with little or no interaction required
- M – person centred and individualized services, citizen and economic development focus replaces welfare, charitable and health approaches
- X – broad recognition that everyone has differences that can foster interaction, relationship and so social and economic opportunity AND that the very characteristics that get turned into symptoms and excuses for labelling are potential for interaction, relationship and so social and economic opportunity
What happened to developing a common literacy about Inclusion.
To make the leap one must understand “Giftedness” – that is that gifts are anything you have, are or do that creates an opportunity for interaction and that interaction is fundamental to relationship and so social and economic opportunity. All differences are gifts.
Anyone who believes that either they themselves or anyone else is not what they should be already is in a trap.
Tell some stories.
Explain my organization bases and my history. Explain that recreating the same sort of organizations as already exist will automatically exclude most people who are labelled.
Excluded people LOOK like they are not contributing. This is a structural limitation.
Hospitality is a powerful stimulation for Basic Inclusion. What happened to revolutionary lunches?
Economics and Inclusion? We already said uneven labour market practices were founded in social exclusion. There is an inseparable link. This is a POLICY issue.
How ACF spends its money, and currently, if ACF spends its money, is a mark of its true values. In terms of X Inclusion, withholding its resources totally indicates no willingness to enter into genuine dialogue with those whose citizenship remains unexpressed.
Tuesday, December 28, 2010
December 28, 2010
Mike has pretty much finished reading through the autobiography section of the 475 pages we assembled last week. Kimberly is reading too, and getting quite into it, as in she is upset about some of it! Interesting! Their reactions reconnect me with my story.
As editor Mike has suggested that I write about the end of Cycle 2 as a bridge into the central location of the book – Cycle 3. Makes sense, and at the same time, it’s a bit intimidating. It might take more than two pages. It might take time and effort.
But it’s TIME – time for this book.
So here goes, Mike!
I became conscious that another cycle had ended or was coming to an end at about the time of my 60th birthday. I am not clear. Recently I have been noticing that my memory for events from the time of returning from the 2008/09 tour – late April 2009 through my hospitalization in Oct. 2010 – is jumbled. I chalk it up to stress, the growing infection in my body and the actual effect of one Cycle passing into another.
The foundation of the concept of my life being in 30 year cycles comes from the belief – powerfully communicated to me when I was six or so - that I certainly could not live past thirty years of age. At about that time I was enrolled in a research study conducted at “Sick Kids” – the Hospital for Sick Kids in Toronto. From that point I was to take two trips every six months into a big city, by car, at a time when such a voyage was strenuous for every person involved – me, my mother and my father.
There are several elements of this pattern that created fundamental perceptions of life for me. The adult Judith has always struggled with the “obvious” conclusions that the child came to in these four trips every year.
First of all, I knew I must be sick. Why so much attention from doctors and big hospital people if I wasn’t sick! Secondly nearly every encounter was bookmarked by intense pain and loneliness, and at the same time a sense of specialness and intimacy. For example, on each of these mornings my father would get me up – something which otherwise my mother always did. He always gave me the special breakfast – boiled egg mashed up on buttered, nearly burnt toast – a breakfast that I looked forward to passionately. Once the appointments were completed my mother always took me for an extra special lunch. She never said anything but it was understood that it was her way of saying that she knew how much these trips were a source of pain and loneliness for me. Finally, the doctors always paid a certain amount of special attention to me and expected me to perform in some entertaining way. For example, they always asked me to tell them a joke on each occasion. I realized at a very early age that this attention set me apart in some way, and so as much as the actual occasions were difficult, I also at some level looked forward to these benchmarks in my otherwise boring life.
And so, the fundamental themes of my life were well established before I was eight. I was special, I was different, I was dying, I was to be treated painfully by every adult who mattered to me, and I had nothing to say about any of it, except to be ready to tell jokes and eat lots of good food. I was very chubby until my 50’s.
(To be continued…)
As editor Mike has suggested that I write about the end of Cycle 2 as a bridge into the central location of the book – Cycle 3. Makes sense, and at the same time, it’s a bit intimidating. It might take more than two pages. It might take time and effort.
But it’s TIME – time for this book.
So here goes, Mike!
I became conscious that another cycle had ended or was coming to an end at about the time of my 60th birthday. I am not clear. Recently I have been noticing that my memory for events from the time of returning from the 2008/09 tour – late April 2009 through my hospitalization in Oct. 2010 – is jumbled. I chalk it up to stress, the growing infection in my body and the actual effect of one Cycle passing into another.
The foundation of the concept of my life being in 30 year cycles comes from the belief – powerfully communicated to me when I was six or so - that I certainly could not live past thirty years of age. At about that time I was enrolled in a research study conducted at “Sick Kids” – the Hospital for Sick Kids in Toronto. From that point I was to take two trips every six months into a big city, by car, at a time when such a voyage was strenuous for every person involved – me, my mother and my father.
There are several elements of this pattern that created fundamental perceptions of life for me. The adult Judith has always struggled with the “obvious” conclusions that the child came to in these four trips every year.
First of all, I knew I must be sick. Why so much attention from doctors and big hospital people if I wasn’t sick! Secondly nearly every encounter was bookmarked by intense pain and loneliness, and at the same time a sense of specialness and intimacy. For example, on each of these mornings my father would get me up – something which otherwise my mother always did. He always gave me the special breakfast – boiled egg mashed up on buttered, nearly burnt toast – a breakfast that I looked forward to passionately. Once the appointments were completed my mother always took me for an extra special lunch. She never said anything but it was understood that it was her way of saying that she knew how much these trips were a source of pain and loneliness for me. Finally, the doctors always paid a certain amount of special attention to me and expected me to perform in some entertaining way. For example, they always asked me to tell them a joke on each occasion. I realized at a very early age that this attention set me apart in some way, and so as much as the actual occasions were difficult, I also at some level looked forward to these benchmarks in my otherwise boring life.
And so, the fundamental themes of my life were well established before I was eight. I was special, I was different, I was dying, I was to be treated painfully by every adult who mattered to me, and I had nothing to say about any of it, except to be ready to tell jokes and eat lots of good food. I was very chubby until my 50’s.
(To be continued…)
Sunday, December 26, 2010
December 26, 2010
There are moments when the need for greater integrity asserts itself. I have noticed that culturally it’s something we often think about at year’s end. The need has been calling to me, and those near to me, urgently for some time, but especially since Wednesday or so.
In Landmark Education lingo integrity is about workability, not morality. We speak about “unworkability” coming from missing integrity – some element of a physical structure, a network of communication or a plan that – by not having been put in place, or in being forgotten or ignored – weakens the project or relationship and makes room for ineffectiveness and drama.
For powerful people integrity is nearly always “out” because, paradoxically, success creates change in the world which brings a need for new projects, which need different integrity, and so some element is always going to be not yet in place. Powerful people must be continuously looking for what’s missing. “Missings” will be in the area of context, complete work, honest and open communication, and meeting other’s and your own expectations.
Yesterday I wrote about the missing integrity that was coming up for me around the celebration of Christmas. It came up similarly today in that the friends I was with have had to leave where they were living for the second year in a row at Christmas time. We met to “celebrate” in a back kitchen of a church. They are safe, warm and fed, but without the sort of stability that permits moving forward in meeting goals. The disorientation and anxiety were palpable.
In other areas, money is needed to build up WPIT projects and its organization, and to stabilize my staffing and home. The integrity of living on ODSP is very different from the structures, commitments and communication – not to mention day-to-day action – that will bring in our ideal $6 million to give WPIT and me a solid foundation. While between these “ways of life” I need to live poor and think and act rich – another sort of integrity to create as I move toward having money.
Mike and I were talking about the integrity of being lazy. I find that if I never plan for time off or don’t stick to my plan, subtly the sense that I am a martyr to the cause of Inclusion creeps in and I become tired, scattered and ineffective. However, not just any sort of laziness truly satisfies – leaving me with the willingness to keep my commitments. Mike and I were talking about what sorts of time off and undone activities truly satisfy that “time-off” urge.
Then there are the books. Tonight we began the rough sorting of my writings into two types – autobiography and theory. It’s the beginning of creating the integrity of the two books – integrities that we want to put into place rapidly, and while lots of other things are going on at the same time. What will become available is that at least one book can be sold with the ROM exhibit this summer creating the context for people’s interest in it. This can generate income that I need for me, staffing and WPIT.
It’s not quite like making a New Year’s resolution. And it is also like it. It’s all about reinvention. This blog is part of the expression of this reinvention. The “third cycle” model is also integral to remodelling of Judith Snow and her interesting life.
I learned last week that keeping my resolutions – recreating integrity – demands that I treat my unwillingness like a seven year old who is learning new behaviours and skills. Beating myself up makes no sense and doesn’t work all that well in any case. So I made myself a behaviour modification chart and I will put a happy face sticker on every part of the chart where I keep my promise to myself to fundraise.
Tomorrow I begin again.
In Landmark Education lingo integrity is about workability, not morality. We speak about “unworkability” coming from missing integrity – some element of a physical structure, a network of communication or a plan that – by not having been put in place, or in being forgotten or ignored – weakens the project or relationship and makes room for ineffectiveness and drama.
For powerful people integrity is nearly always “out” because, paradoxically, success creates change in the world which brings a need for new projects, which need different integrity, and so some element is always going to be not yet in place. Powerful people must be continuously looking for what’s missing. “Missings” will be in the area of context, complete work, honest and open communication, and meeting other’s and your own expectations.
Yesterday I wrote about the missing integrity that was coming up for me around the celebration of Christmas. It came up similarly today in that the friends I was with have had to leave where they were living for the second year in a row at Christmas time. We met to “celebrate” in a back kitchen of a church. They are safe, warm and fed, but without the sort of stability that permits moving forward in meeting goals. The disorientation and anxiety were palpable.
In other areas, money is needed to build up WPIT projects and its organization, and to stabilize my staffing and home. The integrity of living on ODSP is very different from the structures, commitments and communication – not to mention day-to-day action – that will bring in our ideal $6 million to give WPIT and me a solid foundation. While between these “ways of life” I need to live poor and think and act rich – another sort of integrity to create as I move toward having money.
Mike and I were talking about the integrity of being lazy. I find that if I never plan for time off or don’t stick to my plan, subtly the sense that I am a martyr to the cause of Inclusion creeps in and I become tired, scattered and ineffective. However, not just any sort of laziness truly satisfies – leaving me with the willingness to keep my commitments. Mike and I were talking about what sorts of time off and undone activities truly satisfy that “time-off” urge.
Then there are the books. Tonight we began the rough sorting of my writings into two types – autobiography and theory. It’s the beginning of creating the integrity of the two books – integrities that we want to put into place rapidly, and while lots of other things are going on at the same time. What will become available is that at least one book can be sold with the ROM exhibit this summer creating the context for people’s interest in it. This can generate income that I need for me, staffing and WPIT.
It’s not quite like making a New Year’s resolution. And it is also like it. It’s all about reinvention. This blog is part of the expression of this reinvention. The “third cycle” model is also integral to remodelling of Judith Snow and her interesting life.
I learned last week that keeping my resolutions – recreating integrity – demands that I treat my unwillingness like a seven year old who is learning new behaviours and skills. Beating myself up makes no sense and doesn’t work all that well in any case. So I made myself a behaviour modification chart and I will put a happy face sticker on every part of the chart where I keep my promise to myself to fundraise.
Tomorrow I begin again.
Friday, December 17, 2010
December 17, 2010
I made $375 today. Tomorrow I will make $500.
I hope I have made enough to offset the cost of fixing the flat tire I discovered as I set out tonight to shop for Christmas!
As I lay awake this morning before Helen came to get me up I watched in the early dawn light while the crane by the “boxes” inside the railway yard fence drew up its cable. I watched for a few more minutes but it did not move again. The boxes had been rearranged a little overnight and there are new gaps between them. Beyond these alterations, and that the crane is facing the opposite way from yesterday, there is no change in the goings on of the marshalling yard.
I wondered – again – what is going on that must mainly happen at night.
Soon after I got up I counted the construction cranes visible to me from my bedroom window. There are six. Each one is distinct from the others in size, shape and colour.
Nearly always they stand motionless. One in particular has a motion of bobbing like a long-necked bird dropping its beak into a stream for fish. It has stood “beak down” for a few days now, looking very weird indeed. Together, when they stand still all day, they remind me of the dinosaur exhibit at the ROM.
Since I was in a counting mood I counted the different types of rail car visible in the yard. Again six. The large double decker orange/white/yellow passenger car belongs to a train called “Rocky Mountaineer”. (I drove closer mid-morning to read the indistinct words.) The remainder of its cars are black and white. This giant train has been here, motionless, for about a week.
Eighty percent of the cars on or moving through the yard are “Go Train” vehicles. These double decker conveyances are big, but not nearly as tall as the three or four cars of “Rocky”. The seven “Go Train” engine cars that are lined up in a flying wedge formation have not moved for about a week either!
The single story passenger cars of the “Via Rail” seem miniscule in comparison. However, they don’t hang around!
The rest of the train cars are flat beds – part of a freight train. Occasionally one will see the other sorts of freight car, but not today.
It is something of a mystery to me that so much valuable stuff – gigantic construction cranes, passenger cars, each with the capacity of a movie theatre, huge prefab buildings, sleek and fast engines – can sit idle for such long time periods. Certainly we are given to believe that the economy is run as efficiently as possible and that there’s an elaborate plan behind it all. But from the vantage point of my bedroom window I have a very different impression.
Have I stumbled across a train set that has been abandoned while some bored child of a giant takes an afternoon’s nap? Why does this huge child play only at night, or is it his father who secretly moves the blocks, cars and cranes around while his son sleeps?
I can only exercise my imagination – likely I will never know what is behind this great idleness. However, I am very pleased that I am a spectator to it all.
I hope I have made enough to offset the cost of fixing the flat tire I discovered as I set out tonight to shop for Christmas!
As I lay awake this morning before Helen came to get me up I watched in the early dawn light while the crane by the “boxes” inside the railway yard fence drew up its cable. I watched for a few more minutes but it did not move again. The boxes had been rearranged a little overnight and there are new gaps between them. Beyond these alterations, and that the crane is facing the opposite way from yesterday, there is no change in the goings on of the marshalling yard.
I wondered – again – what is going on that must mainly happen at night.
Soon after I got up I counted the construction cranes visible to me from my bedroom window. There are six. Each one is distinct from the others in size, shape and colour.
Nearly always they stand motionless. One in particular has a motion of bobbing like a long-necked bird dropping its beak into a stream for fish. It has stood “beak down” for a few days now, looking very weird indeed. Together, when they stand still all day, they remind me of the dinosaur exhibit at the ROM.
Since I was in a counting mood I counted the different types of rail car visible in the yard. Again six. The large double decker orange/white/yellow passenger car belongs to a train called “Rocky Mountaineer”. (I drove closer mid-morning to read the indistinct words.) The remainder of its cars are black and white. This giant train has been here, motionless, for about a week.
Eighty percent of the cars on or moving through the yard are “Go Train” vehicles. These double decker conveyances are big, but not nearly as tall as the three or four cars of “Rocky”. The seven “Go Train” engine cars that are lined up in a flying wedge formation have not moved for about a week either!
The single story passenger cars of the “Via Rail” seem miniscule in comparison. However, they don’t hang around!
The rest of the train cars are flat beds – part of a freight train. Occasionally one will see the other sorts of freight car, but not today.
It is something of a mystery to me that so much valuable stuff – gigantic construction cranes, passenger cars, each with the capacity of a movie theatre, huge prefab buildings, sleek and fast engines – can sit idle for such long time periods. Certainly we are given to believe that the economy is run as efficiently as possible and that there’s an elaborate plan behind it all. But from the vantage point of my bedroom window I have a very different impression.
Have I stumbled across a train set that has been abandoned while some bored child of a giant takes an afternoon’s nap? Why does this huge child play only at night, or is it his father who secretly moves the blocks, cars and cranes around while his son sleeps?
I can only exercise my imagination – likely I will never know what is behind this great idleness. However, I am very pleased that I am a spectator to it all.
Tuesday, December 7, 2010
December 7, 2010
I have been actively writing a brief for the ROM so tonight I will share something I wrote in March, 2001.
Thoughts on Self Determination
I was searching on the internet the other day and I found that the phrase “self determination” brought up a large number of articles on political sovereignty for colonized nations and for aboriginal groups. This got me to thinking again about the use these words when people talk about and plan with people who are labeled disabled.
Most groups in the world gained their distinctive identity because they have a definite geographical or ecological boundary, or because they share a culture. In my country, Canada, there are aboriginal groups who descend from people who lived as prairie hunters or woodland gatherers or tundra dwellers. Today they are fighting for their sovereignty -- their right to decide for themselves how to use their own resources, solve their own problems and conduct their own business, education and government. Also, the people who are descendants of settlers from France are also fighting for their self determination in Canada -- their sovereignty. They have remained a distinct group in the broader Canadian population because their language is still strong and vital, able to be used in everyday affairs of business and politics. French speaking people live mostly in the province of Quebec and so this group also has a geographic location and definition.
Are people who have been classified as disabled such a group? I don’t think so. Rather than being naturally a separate group, we are born, or acquire our “disability” identity, everywhere among people. We share every geography, ecology, language and culture with all human beings.
The term “self determination” is used in a different way when we are thinking of people who are labeled disabled. For us self determination is defined -- not as sovereignty -- but as Freedom, Authority, Support, and Responsibility. Advocates of self determination for people who are called disabled view these principles as the cornerstones that are required for a person to live a life of full participation in society.
Ever since I first heard the words “self determination” used in relationship to people who are considered disabled I have not liked this term. Don’t get me wrong. I work everyday to help make it possible for everyone to live in their own communities, choose their own homes and life styles, get good incomes, be respected, have friends and loved ones, and make the contributions they want to make through employment or in other ways that make sense to them.
It’s just that people who have great lives are not independent and not self determined -- no matter whether they are labeled able or disabled. All human life is made possible through relationship. Everything we know, everything we choose, everything we learn or do is in some way connected to other human beings. It is not more separateness that leads to vibrant lives of contribution, it is a better quality of relationship and cooperation. Independence does not lead to sovereignty in one’s own life -- the right sorts of relationship do!
The more powerful and fulfilled a person is the better is the quality of her or his relationships with other people. Powerful people influence and are influenced by thousands of other people. People listen to them and respect them -- they themselves also listen to and respect many other people. People who are fulfilled make choices based on knowledge and support garnered in a vast array of relationship -- personal and public, paid and unpaid, intimate and casual.
In other words a really good way to stay poor and isolated and unable to have a very good life is to keep trying to be independent!
“Disability” is really a lie. “Disability” is the idea that some people, because their bodies or minds or emotions function in ways that are unusual, are somehow unable to live fully as human beings. The truth is that every human being has some ordinary ways of being and some unusual ways. Everyone suffers sometimes and has burdens and sometimes burdens others. Everyone also has times of joy, sometimes gives something to someone else, and has the possibility of creating opportunity for others in the world. Paradoxically the most common thing about people is that everyone has unique ways of being themselves.
In our world the disability label is used as a way to set people apart from society. In other words “disability” is used as an excuse to deny us the sort of relationships and cooperation that would allow us to take our full place along side of other citizens in a diverse community.
There really is no lack of money or resources. And although there is always room for learning better ways to support people, we really do know basically how to include everyone together in one world. The question is: “Will we?”
The question: “Will we?” is not a question of personal independence and self determination. It is a question of relationship and politics. We are all citizens, regardless of ability. How are people who are called disabled going to take their full place in the world? We all need to take a part in answering this question.
A mistaken sense that self determination is the concern of one individual has often led to more of the same old thing. Those who don’t understand or want full participation everywhere can easily dress up segregation and oppression as choice. Too often, for example, a person is offered a “choice” between a group home, isolated living in an agency owned apartment or living as a paying guest in someone else’s family. Choosing between options that all are designed to keep you small is not real citizenship, whether or not it is self determination.
Advocates, family members and we who are labeled disabled must seek a deeper vision. We are human and society must reflect our human reality as much as it reflects the human reality of those who imagine their abilities are perfect and permanent. We must imagine a society where our unique and our ordinary contributions are opportunities for everyone and where we fundamentally belong. Such a society is the birthright of all people.
In the long run perhaps it doesn‘t really matter whether advocates continue to use the words “independent” and “self determination”. What matters, I believe, is that we continue to spread the vision that all abilities are needed in community to make the world complete and whole. Let us continue to work to make this vision real.
Thoughts on Self Determination
I was searching on the internet the other day and I found that the phrase “self determination” brought up a large number of articles on political sovereignty for colonized nations and for aboriginal groups. This got me to thinking again about the use these words when people talk about and plan with people who are labeled disabled.
Most groups in the world gained their distinctive identity because they have a definite geographical or ecological boundary, or because they share a culture. In my country, Canada, there are aboriginal groups who descend from people who lived as prairie hunters or woodland gatherers or tundra dwellers. Today they are fighting for their sovereignty -- their right to decide for themselves how to use their own resources, solve their own problems and conduct their own business, education and government. Also, the people who are descendants of settlers from France are also fighting for their self determination in Canada -- their sovereignty. They have remained a distinct group in the broader Canadian population because their language is still strong and vital, able to be used in everyday affairs of business and politics. French speaking people live mostly in the province of Quebec and so this group also has a geographic location and definition.
Are people who have been classified as disabled such a group? I don’t think so. Rather than being naturally a separate group, we are born, or acquire our “disability” identity, everywhere among people. We share every geography, ecology, language and culture with all human beings.
The term “self determination” is used in a different way when we are thinking of people who are labeled disabled. For us self determination is defined -- not as sovereignty -- but as Freedom, Authority, Support, and Responsibility. Advocates of self determination for people who are called disabled view these principles as the cornerstones that are required for a person to live a life of full participation in society.
Ever since I first heard the words “self determination” used in relationship to people who are considered disabled I have not liked this term. Don’t get me wrong. I work everyday to help make it possible for everyone to live in their own communities, choose their own homes and life styles, get good incomes, be respected, have friends and loved ones, and make the contributions they want to make through employment or in other ways that make sense to them.
It’s just that people who have great lives are not independent and not self determined -- no matter whether they are labeled able or disabled. All human life is made possible through relationship. Everything we know, everything we choose, everything we learn or do is in some way connected to other human beings. It is not more separateness that leads to vibrant lives of contribution, it is a better quality of relationship and cooperation. Independence does not lead to sovereignty in one’s own life -- the right sorts of relationship do!
The more powerful and fulfilled a person is the better is the quality of her or his relationships with other people. Powerful people influence and are influenced by thousands of other people. People listen to them and respect them -- they themselves also listen to and respect many other people. People who are fulfilled make choices based on knowledge and support garnered in a vast array of relationship -- personal and public, paid and unpaid, intimate and casual.
In other words a really good way to stay poor and isolated and unable to have a very good life is to keep trying to be independent!
“Disability” is really a lie. “Disability” is the idea that some people, because their bodies or minds or emotions function in ways that are unusual, are somehow unable to live fully as human beings. The truth is that every human being has some ordinary ways of being and some unusual ways. Everyone suffers sometimes and has burdens and sometimes burdens others. Everyone also has times of joy, sometimes gives something to someone else, and has the possibility of creating opportunity for others in the world. Paradoxically the most common thing about people is that everyone has unique ways of being themselves.
In our world the disability label is used as a way to set people apart from society. In other words “disability” is used as an excuse to deny us the sort of relationships and cooperation that would allow us to take our full place along side of other citizens in a diverse community.
There really is no lack of money or resources. And although there is always room for learning better ways to support people, we really do know basically how to include everyone together in one world. The question is: “Will we?”
The question: “Will we?” is not a question of personal independence and self determination. It is a question of relationship and politics. We are all citizens, regardless of ability. How are people who are called disabled going to take their full place in the world? We all need to take a part in answering this question.
A mistaken sense that self determination is the concern of one individual has often led to more of the same old thing. Those who don’t understand or want full participation everywhere can easily dress up segregation and oppression as choice. Too often, for example, a person is offered a “choice” between a group home, isolated living in an agency owned apartment or living as a paying guest in someone else’s family. Choosing between options that all are designed to keep you small is not real citizenship, whether or not it is self determination.
Advocates, family members and we who are labeled disabled must seek a deeper vision. We are human and society must reflect our human reality as much as it reflects the human reality of those who imagine their abilities are perfect and permanent. We must imagine a society where our unique and our ordinary contributions are opportunities for everyone and where we fundamentally belong. Such a society is the birthright of all people.
In the long run perhaps it doesn‘t really matter whether advocates continue to use the words “independent” and “self determination”. What matters, I believe, is that we continue to spread the vision that all abilities are needed in community to make the world complete and whole. Let us continue to work to make this vision real.
Thursday, November 25, 2010
November 25, 2010
It’s relatively early in the day. I usually write these near 11:30pm and it’s just past 11:30am. I have just heard momentous news, and I am going to be writing e-mails to friends and colleagues everywhere. I figure I may as well do it this way, and take parts of this and turn it into the e-mails later. It might save some Morse Code puffing!
I have just heard that my paintings and the play – The Book of Judith (http://bookofjudithplay.blogspot.com/) – are going to be exhibited at the Royal Ontario Museum (ROM). I am to be a guest curator. The theme will be my legacy of Inclusion and my growing understanding and message portrayed as art, video and other interactive elements. After a stationary instalment in the museum itself, we will tour both the play and art. This will be in partnership with the Trillium Foundation who are already backing a spring and fall tour of The Book of Judith.
In all it’s a year’s commitment to celebrating Inclusion and diversity.
Michael Rubenfeld and Sarah Garton Stanley are integral to the creation, development, production and presentation of the play. We will be in close collaboration for all of it!
Even the World Peace through Inclusive Transformation will get a leg up as this theme and initiative are very much part of my legacy. Will I finally be able to get research backing for the BMX Model of Inclusion?
Recognition and the opening of doors come in quiet and unassuming ways. Yesterday included a last minute rearrangement of my schedule so I could participate in a teleconference with the ROM. It was no big deal – I am always rearranging my schedule last minute. Staff needed on the spot support to put a last minute proposal in front of the museum’s exhibit selection committee. Today I was in bed, getting ready to get up so the technician could fix the electronics of my bed. The call came and my future shifted.
It’s such an ordinary moment that my emotions haven’t caught up. I get what Mike was saying about meeting with the video game producers on Monday. It’s such an ordinary day, unlike a special day that one has been preparing for - a wedding or graduation - that the obvious next step is to go have lunch. The overall mood is so ordinary, so: “Well, of course – what else would we do except say yes.” In the absence of a big high it nearly feels like a low.
Yet I have been preparing for this day in one way or another since I was four – 57 years. I am coming home to a rightful place in the world. I don’t need a big high right now. I need to place myself firmly in the passion for Inclusion that has carried me through these 57 years. I need to fully feel and express my gratitude for the opening, for the many hands – seen and unseen – that have carried me to this day, and for the vision, energy and courage I have been given to keep on working the path when there was no sign that this future was realizable. Hallelujah!
Michael and I will be at the ROM on Monday for the first production meeting, to find out really what we need to do to set up the contracts, partnerships, etc. Then we will go have a beer. By then I think I will be ready to celebrate!
I have just heard that my paintings and the play – The Book of Judith (http://bookofjudithplay.blogspot.com/) – are going to be exhibited at the Royal Ontario Museum (ROM). I am to be a guest curator. The theme will be my legacy of Inclusion and my growing understanding and message portrayed as art, video and other interactive elements. After a stationary instalment in the museum itself, we will tour both the play and art. This will be in partnership with the Trillium Foundation who are already backing a spring and fall tour of The Book of Judith.
In all it’s a year’s commitment to celebrating Inclusion and diversity.
Michael Rubenfeld and Sarah Garton Stanley are integral to the creation, development, production and presentation of the play. We will be in close collaboration for all of it!
Even the World Peace through Inclusive Transformation will get a leg up as this theme and initiative are very much part of my legacy. Will I finally be able to get research backing for the BMX Model of Inclusion?
Recognition and the opening of doors come in quiet and unassuming ways. Yesterday included a last minute rearrangement of my schedule so I could participate in a teleconference with the ROM. It was no big deal – I am always rearranging my schedule last minute. Staff needed on the spot support to put a last minute proposal in front of the museum’s exhibit selection committee. Today I was in bed, getting ready to get up so the technician could fix the electronics of my bed. The call came and my future shifted.
It’s such an ordinary moment that my emotions haven’t caught up. I get what Mike was saying about meeting with the video game producers on Monday. It’s such an ordinary day, unlike a special day that one has been preparing for - a wedding or graduation - that the obvious next step is to go have lunch. The overall mood is so ordinary, so: “Well, of course – what else would we do except say yes.” In the absence of a big high it nearly feels like a low.
Yet I have been preparing for this day in one way or another since I was four – 57 years. I am coming home to a rightful place in the world. I don’t need a big high right now. I need to place myself firmly in the passion for Inclusion that has carried me through these 57 years. I need to fully feel and express my gratitude for the opening, for the many hands – seen and unseen – that have carried me to this day, and for the vision, energy and courage I have been given to keep on working the path when there was no sign that this future was realizable. Hallelujah!
Michael and I will be at the ROM on Monday for the first production meeting, to find out really what we need to do to set up the contracts, partnerships, etc. Then we will go have a beer. By then I think I will be ready to celebrate!
Tuesday, November 23, 2010
November 23, 2010
I am almost too tired to do this, although it has been a momentous day, more than worth writing about. My mind has dissipated to the level of playing Freecell for an hour, knowing I want to write and that have lots to do and respond to. I am just tired – in a very satisfied and somewhat overwhelmed way.
Sometimes – tonight – I imagine myself when I was 30 or 45 years younger and try to figure out if I could have ever predicted my life as it is now from the perspective of those days. I was with Mike at supper. He is 36 years younger than I am (as I often remind him!) and I was losing myself in a reverie about IF I could have believed then that today COULD even happen.
Some things are clearly enough in a line to have been comprehensible. Four walls, table cloths, stuff like that. But much beyond this mind numbing simplicity and clearly my life has leapt into so many dimensions that the child and young adult Judith had no imagination of. A simple example – I have many ceramics – very beautiful pieces – given to me by the artists who made them, and more than one each! I could not have permitted myself at 25 to imagine that I would have such friends. That I myself would be an artist was certainly not in my purview.
Tonight Mike, his friend Kevin and I presented a potential WPIT project to a class of young students who are learning to design and develop video games. The idea is to create a series of video games that require the players to build inclusive solutions to the games’ problems. Without getting into details (perhaps in the near future!) we were met with focussed interest and enthusiasm. Some twenty students and the teacher signed up to find out more and to start designing and writing the required code.
When I was twenty-five I had spent a summer coding data onto charts printed on legal sized paper so key punch typists could create the cards that fed an apartment-sized computer.
Three professors had at that same time showed off to me their personal computers and proudly demonstrated how to play Pac Man.
I understood Inclusion to mean that I should be fighting for the right to share an apartment with someone who had quadriplegia and with whom I had no particular relationship. In this apartment and ONLY in this apartment I would be able to get six hours a day of personal assistance given to me by someone I did not hire who was trained by someone else to “take care” of me. It was the best I could hope for at 25.
I understood that I was lucky to hope that someday I would be employed by some corporation to do something like HR work. I had been told by knowledgeable professionals that I would not live past thirty and that I would have few if any friends.
Tonight Mike and I were talking about a certain quiet feeling, almost like a let down, that one can have after a very successful event. In this case we are having the kind of experience that hard work, good luck and a really good idea are coming together. In one sense it should be perfectly obvious that such a thing as Inclusive video games can be created. On the other hand I think we both know that this evening and this project could easily go the other way.
I said to Mike that I recognize that quiet feeling as being different from enthusiasm. For me, it is about passion and gratitude. Enthusiasm is a cheap high that easily dissipates when circumstances change or even when it’s just the next morning. Passion is a long term energy and one is very fortunate indeed to be able to live inside the space of one’s own passion.
And this is where gratitude comes in, at least for me. I am deeply moved that my life has been given so many opportunities to extend beyond anything I could or still can imagine. Not only am I someone who gets to do what I love to do; I am also someone who is blessed with unique surprises that take me well beyond the kind of life I would have created for myself if it were all left up to me.
Call it God or call it whatever makes sense to you. My life is clearly in the hands of a power greater than myself and in my opinion that is a very good thing!
Sometimes – tonight – I imagine myself when I was 30 or 45 years younger and try to figure out if I could have ever predicted my life as it is now from the perspective of those days. I was with Mike at supper. He is 36 years younger than I am (as I often remind him!) and I was losing myself in a reverie about IF I could have believed then that today COULD even happen.
Some things are clearly enough in a line to have been comprehensible. Four walls, table cloths, stuff like that. But much beyond this mind numbing simplicity and clearly my life has leapt into so many dimensions that the child and young adult Judith had no imagination of. A simple example – I have many ceramics – very beautiful pieces – given to me by the artists who made them, and more than one each! I could not have permitted myself at 25 to imagine that I would have such friends. That I myself would be an artist was certainly not in my purview.
Tonight Mike, his friend Kevin and I presented a potential WPIT project to a class of young students who are learning to design and develop video games. The idea is to create a series of video games that require the players to build inclusive solutions to the games’ problems. Without getting into details (perhaps in the near future!) we were met with focussed interest and enthusiasm. Some twenty students and the teacher signed up to find out more and to start designing and writing the required code.
When I was twenty-five I had spent a summer coding data onto charts printed on legal sized paper so key punch typists could create the cards that fed an apartment-sized computer.
Three professors had at that same time showed off to me their personal computers and proudly demonstrated how to play Pac Man.
I understood Inclusion to mean that I should be fighting for the right to share an apartment with someone who had quadriplegia and with whom I had no particular relationship. In this apartment and ONLY in this apartment I would be able to get six hours a day of personal assistance given to me by someone I did not hire who was trained by someone else to “take care” of me. It was the best I could hope for at 25.
I understood that I was lucky to hope that someday I would be employed by some corporation to do something like HR work. I had been told by knowledgeable professionals that I would not live past thirty and that I would have few if any friends.
Tonight Mike and I were talking about a certain quiet feeling, almost like a let down, that one can have after a very successful event. In this case we are having the kind of experience that hard work, good luck and a really good idea are coming together. In one sense it should be perfectly obvious that such a thing as Inclusive video games can be created. On the other hand I think we both know that this evening and this project could easily go the other way.
I said to Mike that I recognize that quiet feeling as being different from enthusiasm. For me, it is about passion and gratitude. Enthusiasm is a cheap high that easily dissipates when circumstances change or even when it’s just the next morning. Passion is a long term energy and one is very fortunate indeed to be able to live inside the space of one’s own passion.
And this is where gratitude comes in, at least for me. I am deeply moved that my life has been given so many opportunities to extend beyond anything I could or still can imagine. Not only am I someone who gets to do what I love to do; I am also someone who is blessed with unique surprises that take me well beyond the kind of life I would have created for myself if it were all left up to me.
Call it God or call it whatever makes sense to you. My life is clearly in the hands of a power greater than myself and in my opinion that is a very good thing!
Tuesday, November 16, 2010
November 16, 2010
It was a good Laser Eagles day today. Of course, just about every Laser Eagles day is a good day. I enjoy being with the other artists. I enjoy working with a tracker – today my tracker was Mike Skubic. I enjoy the process of painting even when I don’t like the result that much. I don’t really like my last two paintings, but I’m not sure that I’m finished with either one of them anyways.
I thought I would start painting anger today. It ended up being a whole lot more yellow than I thought it would be, and a very bright yellow indeed. Paintings have a way of doing that – I mean turning out very differently than I thought they would be in the beginning. I have never really painted with yellow before, so maybe that is an angry colour for me. Just the same, it’s not what I thought anger would look like.
The other reason that it has been a good Laser Eagles day is that we had an organizational meeting and I was pleasantly surprised, perhaps even a little overwhelmed, at how it went. For one thing, I am learning to keep my mouth shut around Kimberly Fu who has an amazing capacity to say things quite differently than I would say them and yet end up with a similar or better result than I could have. In the last few weeks, the CAVE Board, particularly Paul and Bill, have gone from being kind of distracted and even a little resigned about the future of Laser Eagles to being very solid around the possibility of building and expanding. Paul in particular expressed a solid vision for having Laser Eagles be an organization that can sustain itself and be true to its mission. It was very easy to have him see that Kimberly should be the person who will stickhandle the next few months of shifting the organizational foundation.
I see where I have let some important aspects slip. In particular, it is much clearer now why it is important for the artists to sometimes use a way of showing to others that they are directing their trackers. Our familiarity with our trackers and, I believe, a certain laziness has caused us all to use methods of painting where it is easy to imagine that the tracker is choosing how the painting will go. Paul made it clear that others cannot actually see how the artists are making their paintings, and this is detrimental to the potential for fundraising.
Beyond that, the artists have never risen to the challenge of raising money or selling their art and giving the money to the program. I have sold a good number of paintings over the years, but have considered my volunteer efforts to be compensation for the supplies I use. Other artists have stacks of paintings sitting around in their bedrooms or have given some away as gifts. A few have sold paintings but kept all of the money. I don’t begrudge them the money but it is clear that they have not developed a sense of what it takes to sustain a consistent support system for themselves.
We have a real opportunity to show that we are capable of contributing to the organizational aspects of the world. I hope that we are able to actually grasp this opportunity at this time. It would be a big shift in the culture that we call inclusion.
Today I also had an insight into how I keep chaos happening in my financial life. At some point in the meeting I offered to do radio shows to promote Laser Eagles during the Christmas season. One of the CAVE Board members owns a radio station. Paul turned my offer down.
He pointed out that, without the organizational foundation in place, promoting Laser Eagles was detrimental to its long term stability. This is simply because anyone who might want to donate or get involved would not see accountability at this point but would see only our appearance of instability and – I guess what you would call “flying by the seat of our pants”.
How many times in my life have I gotten publicly enthusiastic about a possibility or a project and had nothing concrete to back up my enthusiasm! It is one thing for me to be a blue hat visionary. But visionaries cannot get very far on their own. And so, I have pushed away the very resources that my own life and my creations depend on.
Well, a new part of my history has begun. Cycle 3 has a genuine potential of being a time when I and others realize our wonderful ideas!
I thought I would start painting anger today. It ended up being a whole lot more yellow than I thought it would be, and a very bright yellow indeed. Paintings have a way of doing that – I mean turning out very differently than I thought they would be in the beginning. I have never really painted with yellow before, so maybe that is an angry colour for me. Just the same, it’s not what I thought anger would look like.
The other reason that it has been a good Laser Eagles day is that we had an organizational meeting and I was pleasantly surprised, perhaps even a little overwhelmed, at how it went. For one thing, I am learning to keep my mouth shut around Kimberly Fu who has an amazing capacity to say things quite differently than I would say them and yet end up with a similar or better result than I could have. In the last few weeks, the CAVE Board, particularly Paul and Bill, have gone from being kind of distracted and even a little resigned about the future of Laser Eagles to being very solid around the possibility of building and expanding. Paul in particular expressed a solid vision for having Laser Eagles be an organization that can sustain itself and be true to its mission. It was very easy to have him see that Kimberly should be the person who will stickhandle the next few months of shifting the organizational foundation.
I see where I have let some important aspects slip. In particular, it is much clearer now why it is important for the artists to sometimes use a way of showing to others that they are directing their trackers. Our familiarity with our trackers and, I believe, a certain laziness has caused us all to use methods of painting where it is easy to imagine that the tracker is choosing how the painting will go. Paul made it clear that others cannot actually see how the artists are making their paintings, and this is detrimental to the potential for fundraising.
Beyond that, the artists have never risen to the challenge of raising money or selling their art and giving the money to the program. I have sold a good number of paintings over the years, but have considered my volunteer efforts to be compensation for the supplies I use. Other artists have stacks of paintings sitting around in their bedrooms or have given some away as gifts. A few have sold paintings but kept all of the money. I don’t begrudge them the money but it is clear that they have not developed a sense of what it takes to sustain a consistent support system for themselves.
We have a real opportunity to show that we are capable of contributing to the organizational aspects of the world. I hope that we are able to actually grasp this opportunity at this time. It would be a big shift in the culture that we call inclusion.
Today I also had an insight into how I keep chaos happening in my financial life. At some point in the meeting I offered to do radio shows to promote Laser Eagles during the Christmas season. One of the CAVE Board members owns a radio station. Paul turned my offer down.
He pointed out that, without the organizational foundation in place, promoting Laser Eagles was detrimental to its long term stability. This is simply because anyone who might want to donate or get involved would not see accountability at this point but would see only our appearance of instability and – I guess what you would call “flying by the seat of our pants”.
How many times in my life have I gotten publicly enthusiastic about a possibility or a project and had nothing concrete to back up my enthusiasm! It is one thing for me to be a blue hat visionary. But visionaries cannot get very far on their own. And so, I have pushed away the very resources that my own life and my creations depend on.
Well, a new part of my history has begun. Cycle 3 has a genuine potential of being a time when I and others realize our wonderful ideas!
Sunday, November 7, 2010
November 7, 2010
Today's post is a departure. I have had a GREAT deal of assistance from Mike Skubic in pulling together basic work for World Peace through Inclusive Transformation. I have spent much of my out-of-bed time working on an organizational summary today, SO,
I thought I will just share it with you today (rather than write ANOTHER 2 pages.
WPIT – World Peace through Inclusive Transformation
WPIT is a commitment to have people around the globe understand differences and develop skills so that peace is available to all. The sustainability of world peace will emerge when enough communities appreciate diversity as an asset and have the skills to build personal and social value from interacting effectively with differences.
In society, we often look at diversity as a source of problems – things to be fixed like gang conflicts or situations to be managed like sustaining mixed income neighbourhoods. We rarely look at diversity as a source of opportunity for everybody, except in relatively minimal ways like encouraging “ethnic” restaurants, funding mixed heritage cultural experiences or subsidizing an “alterative” movie industry.
If you ask a typical person how they would describe the community they are part of they would likely say it is a group of people who do the same thing – like my bridge club, or believe the same thing – like my church, or are attached geographically to the same place – my town. People haven’t been taught to look at how diversity is essential to community and every kind of interaction.
If we weren’t different from each other we wouldn’t have the need or capacity to interact. It is not just that interaction would be boring or useless. It would not be possible! It is differences that allow for the capacity to communicate. This is just one of the powerful gifts of diversity.
THE WPIT MISSION
Our mission is to have the concept of Giftedness appreciated everywhere. In addition we aim to have all peoples have the capacity to benefit from diversity so as to have social and economic abundance. This in turn will bring peace to communities everywhere – in other words – world peace.
Giftedness Defined
A gift is anything that you are, have or do which creates an opportunity for you to interact with someone else. Under favourable circumstances such interactions can then be built into sustainable relationships and social and economical opportunities.
Any difference is potentially a gift. If someone has black hair and they discover that some people have red hair, it may become for them an opportunity to dye their tresses. Out of many people acting to fulfill this desire an entire hairstyling industry can be built.
The diversities that get labelled as dangerous, awkward, socially incorrect and disabling, are also fundamentally simply differences and therefore potentially gifts.
In the Giftedness approach, the work of Inclusion is simply to create the circumstances under which people will see their differences as opportunities for each other and know how to fulfill these opportunities.
Interestingly and importantly, when people adopt a Gifted perspective they also become more peaceful. This is simply because they have developed the skills to be creative with diversity and they are also conscious of the social and economic benefits that are being made available. There is less impulse to fight and do harm when there is nothing to fear and everything to gain.
When the world has people experience the concept of Giftedness in everyday life the result will be Inclusion and this will foster peacefulness. This connection between Inclusion and peace is at the heart of what we stand for.
Integral to inclusion is the development of creative and unique social and economic opportunities in local communities. It is a fundamental part of our mission to have Inclusion experienced as a multidimensional set of interactions where creativity can be expressed and to foster sustainable social and economic experiments.
OBJECTIVES
One of WPIT’s key objectives is to research the BMX Model of Inclusion and to have it taught as a practical model for social and economical development.
The BMX Model of Inclusion
We propose that three distinct states of Inclusion co-exist. Neither is better than the other, but often there is an emergent pull to move from one state to another. We are calling these states B, M, and X:
State B (Basic): Groups allow the presence of people with diverse characteristics. State B’s principal quality is that the includers share presence with diversity, but no other changes are anticipated or offered. The includers like their community as is, expect no major shifts, and the included are expected to adapt to the ways and means of the includers and to get along as best they can. Typically the included express gratitude for the opportunity and work hard to not cause difficulties.
State M (Mechanical): Includers recognize that the included are struggling to get along, and are willing to make “accommodations”. The included move beyond simply being grateful for the opportunity to coexist and begin to advocate for support. For example, service providers currently tend to segregate individuals with cognitive challenges and the professionalization of supporters tends to turn citizens into helpers and volunteers instead of friends and colleagues.
State X (Crossover): Both includers and the included recognize that another world is possible, one that benefits from the gifts and contributions available in the cultures, characteristics, and experiences of members of both the including and included groups. The perception fades that there are two sides and a distinct boundary.
Operationalizing the BMX Model:
State B (Basic) A teenager with autism and no speech is kept at the back of a regular classroom, with no attention paid to whether he is building friendships.
State M (Mechanical) All teenagers with “disability” labels are given opportunities to be in a homeroom for 1st period. The school has a resource room for tutoring, an “inclusive” lunchroom, and Special Olympics classes to replace regular gym.
State X (Crossover) Ninth grade students are invited to form a support circle with a teen who loves music, and who also has autism and no speech. Twenty-three students respond. They meet regularly and enthusiastically at different points in their day and week for the next four years. The teen who focuses the circle enjoys participating in the school band, gym and many more classes than anyone originally expected. The other teens express their appreciation at having an alternative to being “Nerds”, “Preps” or simply left out. The school administration notes a dramatic decrease in fights and vandalism.
Another WPIT key objective is to see POISA projects grow communities locally and around the globe.
The Peaceful Open Inclusive Spaces Alliance (POISA)
POISA arises from the experience that communities, work places, schools, etc. can become more peaceful when people of diverse backgrounds come together in ways that draw on diversity as a social asset rather than a liability, and where people are free and supported to create and shape their own activities. The future of POISA is to teach people that Inclusion makes peace possible, to foster the sustainable development of real examples of POISA and to have strategic buy-in around the world. People will come to expect their world to be made up of such spaces.
PEACEFUL Having the capacity to resolve conflict to the benefit of all concerned
OPEN Participants shape their own agendas and activities
INCLUSIVE Diversities among participants are welcome and drawn on as valuable resources
SPACES Locations, contexts, and rules and principles that give participants a safe and facilitative bounded area within which to generate their activities
ALLIANCE Agreements between organizations and individuals to work together to create and preserve a valued experience
On the ground POISA is a complex process of community development consisting of:
the development of a community’s principles of Open Space
supporting the community’s invitation process to become more diverse
capturing the learnings as the community becomes more peaceful
facilitating story telling that deepens the community’s ability to be diverse and peaceful
WPIT HISTORY
Judith Snow has done groundbreaking work throughout her life to have people notice and appreciate the contributions of people who are labelled disabled. She has travelled and taught that, rather than being problems to fix or hide, the differences we call disabilities create a context for relationship and community building and for greater social and economic sustainability. Over time she developed a storehouse of examples of peace making through Inclusion drawn from fields such as education, health care, community development and economics.
In the mid ‘90’s, Judith Snow realized that Inclusion of diversities, if they are appreciated as gifts and contributions, creates the context for people to become peaceful.
WPIT was born when Judith Snow, Gabor Podor, Erin Socall and Jason Wiles toured several states for seven months, speaking with and learning from others who were transforming fear of differences into passion to build social and economic sustainability.
At this time WPIT is conceived as an umbrella organization, seeding and guiding other initiatives and projects that look very different from each other, but which have the common characteristics of being able to teach people and have them build from their differences in ways that foster sustainable relationships, abundance and peacefulness.
PROJECTS
WPIT WORLD PEACE TOURS
In 2008, Judith Snow, Gabor Podor, Erin Socall and Jason Wiles began on an exploration throughout the United States and Canada. This 7 month journey took them deep into the heart of a learning and engagement experience. They worked together with many people who were creatively dealing with deep exclusion in their own lives. From the stories and experiences of the people met along the way, the BMX model of inclusion was developed.
This journey gave the evidence that peace really is available through Inclusion. To experience some of the stories for yourself, you can read the blog from the tour at http://peaceforinclusion.blogspot.com/
The World Peace Tour is scheduled to go back on the road in early 2011 officially launching WPIT’s 2011 projects and spreading Inclusion everywhere it goes. Locations on the current timeline range from Ontario, Minnesota, Georgia, New York and Arizona.
THE “DO SOMETHING GOOD” CAMPAIGN
The Do Something Good campaign is a movement founded by Kimberly Fu in 2005 to get people involved in the community during the holiday season. It started as a simple trip to the Salvation Army with some friends and has now expanded into co-ordinating visits to many different locations and service centres to do many different kinds of tasks. This is an opportunity for people to give from their own gifts to people who are in need. The opportunity appeals especially to people who have always wanted to help but had no idea where to start.
Originally the campaign operated just during the holiday season but now we are functional from early October to the end of the winter season. People aren't required to volunteer for the whole 4 months - whatever can be mustered is perfectly okay. Doing something good can be small or can be large, just as long as the opportunity is there to do something!
There is no reason why we have to restrict ourselves to just the holidays. We hope that every year we will grow in numbers, so we can make this a year-round campaign.
WPIT GAMES
The fastest growing sector in the entertainment industry is video games, surpassing both movies and music combined in 2008, and just like movies and music, the themes in games do not always provide the players with the very best social messages. Imagine the power of fostering peace and reinforcing it through game play!
WPIT Games is a project to do just that. By creating a series of fun, Inclusion themed video games we are generating a community of online gamers who come to a website on a daily basis and are reinforced with themes of diversity and Giftedness. We are expecting that this learning will play out in the rest of their lives, giving gamers a background to act in more Inclusive ways.
We are in the process of creating an alliance with several game development companies for this project, both upstart companies and big businesses. In this way we can tap into the large audience that bigger developers can offer while working with new, unshaped game creators.
Our first project is on track to be released online in early 2011, in time to be entered as part of the 2011 Games 4 Change Festival in New York City.
Examples of On-the-Ground WPIT Projects
Do Something Good 2010 Events
The Brown Bag Drive
Do Something Good is launching the Brown Bag Drive this year, where we will be putting together several large brown bags full of clothes and toiletries for people who are homeless and delivering it downtown during the day, along with a brown bag meal.
Other Current Opportunities
- Toy sorting
- Serving meals to people who are homeless via a shelter/church
- Gift wrapping
- Visiting the elderly/sick kids
- Participating in at-risk youth events
- Food drive sorting
COMMUNITY POT-LUCKS – A POISA PROJECT
The Robert Cooke Community Movement
As a step in building community at the Robert Cooke Housing Co-operative, we are providing space for the members to meet for the purposes of making visible the gifts of everyone in the co-op community—families and singles, young and old, vulnerable people; in other words—everyone. This will support the elements of a satisfying life for all co-op members.
The concept is that each floor comes together for pot-lucks (a meal where everyone brings something to share) so that the residents on every floor in the high-rise and the townhouses can share a space together for socializing. Along with the space—drinks, food and help in facilitating the evening for both adults and children are provided by the people on the floor.
The first pot-luck gathering took place on October 30th 2010 for everyone on the 8th Floor and it was a great success.
Robert Cooke Housing Co-operative operates under the assumption that in community people turn to one another. Everyone has something to give. Together, we operate out of 5 core principles:
1: Assets: Everyone has something to give;
2: Work: Building home and community is real, important work,
3: Reciprocity: Giving is stronger when it’s more than a one-way street,
4: Community: We’re stronger together, and
5: Respect: We deserve it from others – and we owe it to others.
We are making no claims to change anything. What we are doing is setting up a means for people who live in a neighbourhood to come together to tell their personal story. Anybody can throw a party or arrange a pot-luck.. It is the design of this gathering that sets this project apart and makes it a POISA project. The goal of POISA and this project is to develop a model of gathering that educates the participants to the power of Inclusion.
LOOKING FORWARD
From the mid 90’s to 2010, one person’s (Judith Snow) realization that peace can be available through Inclusion has developed into an international collective of projects and activities. We have grown from discussion groups and celebrations into the beginnings of sustainable organization.
For this dream to stay alive, we must continue to put down deep roots into cultures everywhere, especially so that young people will see the opportunity and lend their energy and creativity to the work.
Now is the time for WPIT to emerge as “real”. This will happen as many people join the commitment and the efforts. The question that must be answered now is: “Are you – as an individual or a corporation – are you willing to build World Peace through Inclusion?” If so, please join us in whatever way makes sense to you.
I thought I will just share it with you today (rather than write ANOTHER 2 pages.
WPIT – World Peace through Inclusive Transformation
WPIT is a commitment to have people around the globe understand differences and develop skills so that peace is available to all. The sustainability of world peace will emerge when enough communities appreciate diversity as an asset and have the skills to build personal and social value from interacting effectively with differences.
In society, we often look at diversity as a source of problems – things to be fixed like gang conflicts or situations to be managed like sustaining mixed income neighbourhoods. We rarely look at diversity as a source of opportunity for everybody, except in relatively minimal ways like encouraging “ethnic” restaurants, funding mixed heritage cultural experiences or subsidizing an “alterative” movie industry.
If you ask a typical person how they would describe the community they are part of they would likely say it is a group of people who do the same thing – like my bridge club, or believe the same thing – like my church, or are attached geographically to the same place – my town. People haven’t been taught to look at how diversity is essential to community and every kind of interaction.
If we weren’t different from each other we wouldn’t have the need or capacity to interact. It is not just that interaction would be boring or useless. It would not be possible! It is differences that allow for the capacity to communicate. This is just one of the powerful gifts of diversity.
THE WPIT MISSION
Our mission is to have the concept of Giftedness appreciated everywhere. In addition we aim to have all peoples have the capacity to benefit from diversity so as to have social and economic abundance. This in turn will bring peace to communities everywhere – in other words – world peace.
Giftedness Defined
A gift is anything that you are, have or do which creates an opportunity for you to interact with someone else. Under favourable circumstances such interactions can then be built into sustainable relationships and social and economical opportunities.
Any difference is potentially a gift. If someone has black hair and they discover that some people have red hair, it may become for them an opportunity to dye their tresses. Out of many people acting to fulfill this desire an entire hairstyling industry can be built.
The diversities that get labelled as dangerous, awkward, socially incorrect and disabling, are also fundamentally simply differences and therefore potentially gifts.
In the Giftedness approach, the work of Inclusion is simply to create the circumstances under which people will see their differences as opportunities for each other and know how to fulfill these opportunities.
Interestingly and importantly, when people adopt a Gifted perspective they also become more peaceful. This is simply because they have developed the skills to be creative with diversity and they are also conscious of the social and economic benefits that are being made available. There is less impulse to fight and do harm when there is nothing to fear and everything to gain.
When the world has people experience the concept of Giftedness in everyday life the result will be Inclusion and this will foster peacefulness. This connection between Inclusion and peace is at the heart of what we stand for.
Integral to inclusion is the development of creative and unique social and economic opportunities in local communities. It is a fundamental part of our mission to have Inclusion experienced as a multidimensional set of interactions where creativity can be expressed and to foster sustainable social and economic experiments.
OBJECTIVES
One of WPIT’s key objectives is to research the BMX Model of Inclusion and to have it taught as a practical model for social and economical development.
The BMX Model of Inclusion
We propose that three distinct states of Inclusion co-exist. Neither is better than the other, but often there is an emergent pull to move from one state to another. We are calling these states B, M, and X:
State B (Basic): Groups allow the presence of people with diverse characteristics. State B’s principal quality is that the includers share presence with diversity, but no other changes are anticipated or offered. The includers like their community as is, expect no major shifts, and the included are expected to adapt to the ways and means of the includers and to get along as best they can. Typically the included express gratitude for the opportunity and work hard to not cause difficulties.
State M (Mechanical): Includers recognize that the included are struggling to get along, and are willing to make “accommodations”. The included move beyond simply being grateful for the opportunity to coexist and begin to advocate for support. For example, service providers currently tend to segregate individuals with cognitive challenges and the professionalization of supporters tends to turn citizens into helpers and volunteers instead of friends and colleagues.
State X (Crossover): Both includers and the included recognize that another world is possible, one that benefits from the gifts and contributions available in the cultures, characteristics, and experiences of members of both the including and included groups. The perception fades that there are two sides and a distinct boundary.
Operationalizing the BMX Model:
State B (Basic) A teenager with autism and no speech is kept at the back of a regular classroom, with no attention paid to whether he is building friendships.
State M (Mechanical) All teenagers with “disability” labels are given opportunities to be in a homeroom for 1st period. The school has a resource room for tutoring, an “inclusive” lunchroom, and Special Olympics classes to replace regular gym.
State X (Crossover) Ninth grade students are invited to form a support circle with a teen who loves music, and who also has autism and no speech. Twenty-three students respond. They meet regularly and enthusiastically at different points in their day and week for the next four years. The teen who focuses the circle enjoys participating in the school band, gym and many more classes than anyone originally expected. The other teens express their appreciation at having an alternative to being “Nerds”, “Preps” or simply left out. The school administration notes a dramatic decrease in fights and vandalism.
Another WPIT key objective is to see POISA projects grow communities locally and around the globe.
The Peaceful Open Inclusive Spaces Alliance (POISA)
POISA arises from the experience that communities, work places, schools, etc. can become more peaceful when people of diverse backgrounds come together in ways that draw on diversity as a social asset rather than a liability, and where people are free and supported to create and shape their own activities. The future of POISA is to teach people that Inclusion makes peace possible, to foster the sustainable development of real examples of POISA and to have strategic buy-in around the world. People will come to expect their world to be made up of such spaces.
PEACEFUL Having the capacity to resolve conflict to the benefit of all concerned
OPEN Participants shape their own agendas and activities
INCLUSIVE Diversities among participants are welcome and drawn on as valuable resources
SPACES Locations, contexts, and rules and principles that give participants a safe and facilitative bounded area within which to generate their activities
ALLIANCE Agreements between organizations and individuals to work together to create and preserve a valued experience
On the ground POISA is a complex process of community development consisting of:
the development of a community’s principles of Open Space
supporting the community’s invitation process to become more diverse
capturing the learnings as the community becomes more peaceful
facilitating story telling that deepens the community’s ability to be diverse and peaceful
WPIT HISTORY
Judith Snow has done groundbreaking work throughout her life to have people notice and appreciate the contributions of people who are labelled disabled. She has travelled and taught that, rather than being problems to fix or hide, the differences we call disabilities create a context for relationship and community building and for greater social and economic sustainability. Over time she developed a storehouse of examples of peace making through Inclusion drawn from fields such as education, health care, community development and economics.
In the mid ‘90’s, Judith Snow realized that Inclusion of diversities, if they are appreciated as gifts and contributions, creates the context for people to become peaceful.
WPIT was born when Judith Snow, Gabor Podor, Erin Socall and Jason Wiles toured several states for seven months, speaking with and learning from others who were transforming fear of differences into passion to build social and economic sustainability.
At this time WPIT is conceived as an umbrella organization, seeding and guiding other initiatives and projects that look very different from each other, but which have the common characteristics of being able to teach people and have them build from their differences in ways that foster sustainable relationships, abundance and peacefulness.
PROJECTS
WPIT WORLD PEACE TOURS
In 2008, Judith Snow, Gabor Podor, Erin Socall and Jason Wiles began on an exploration throughout the United States and Canada. This 7 month journey took them deep into the heart of a learning and engagement experience. They worked together with many people who were creatively dealing with deep exclusion in their own lives. From the stories and experiences of the people met along the way, the BMX model of inclusion was developed.
This journey gave the evidence that peace really is available through Inclusion. To experience some of the stories for yourself, you can read the blog from the tour at http://peaceforinclusion.blogspot.com/
The World Peace Tour is scheduled to go back on the road in early 2011 officially launching WPIT’s 2011 projects and spreading Inclusion everywhere it goes. Locations on the current timeline range from Ontario, Minnesota, Georgia, New York and Arizona.
THE “DO SOMETHING GOOD” CAMPAIGN
The Do Something Good campaign is a movement founded by Kimberly Fu in 2005 to get people involved in the community during the holiday season. It started as a simple trip to the Salvation Army with some friends and has now expanded into co-ordinating visits to many different locations and service centres to do many different kinds of tasks. This is an opportunity for people to give from their own gifts to people who are in need. The opportunity appeals especially to people who have always wanted to help but had no idea where to start.
Originally the campaign operated just during the holiday season but now we are functional from early October to the end of the winter season. People aren't required to volunteer for the whole 4 months - whatever can be mustered is perfectly okay. Doing something good can be small or can be large, just as long as the opportunity is there to do something!
There is no reason why we have to restrict ourselves to just the holidays. We hope that every year we will grow in numbers, so we can make this a year-round campaign.
WPIT GAMES
The fastest growing sector in the entertainment industry is video games, surpassing both movies and music combined in 2008, and just like movies and music, the themes in games do not always provide the players with the very best social messages. Imagine the power of fostering peace and reinforcing it through game play!
WPIT Games is a project to do just that. By creating a series of fun, Inclusion themed video games we are generating a community of online gamers who come to a website on a daily basis and are reinforced with themes of diversity and Giftedness. We are expecting that this learning will play out in the rest of their lives, giving gamers a background to act in more Inclusive ways.
We are in the process of creating an alliance with several game development companies for this project, both upstart companies and big businesses. In this way we can tap into the large audience that bigger developers can offer while working with new, unshaped game creators.
Our first project is on track to be released online in early 2011, in time to be entered as part of the 2011 Games 4 Change Festival in New York City.
Examples of On-the-Ground WPIT Projects
Do Something Good 2010 Events
The Brown Bag Drive
Do Something Good is launching the Brown Bag Drive this year, where we will be putting together several large brown bags full of clothes and toiletries for people who are homeless and delivering it downtown during the day, along with a brown bag meal.
Other Current Opportunities
- Toy sorting
- Serving meals to people who are homeless via a shelter/church
- Gift wrapping
- Visiting the elderly/sick kids
- Participating in at-risk youth events
- Food drive sorting
COMMUNITY POT-LUCKS – A POISA PROJECT
The Robert Cooke Community Movement
As a step in building community at the Robert Cooke Housing Co-operative, we are providing space for the members to meet for the purposes of making visible the gifts of everyone in the co-op community—families and singles, young and old, vulnerable people; in other words—everyone. This will support the elements of a satisfying life for all co-op members.
The concept is that each floor comes together for pot-lucks (a meal where everyone brings something to share) so that the residents on every floor in the high-rise and the townhouses can share a space together for socializing. Along with the space—drinks, food and help in facilitating the evening for both adults and children are provided by the people on the floor.
The first pot-luck gathering took place on October 30th 2010 for everyone on the 8th Floor and it was a great success.
Robert Cooke Housing Co-operative operates under the assumption that in community people turn to one another. Everyone has something to give. Together, we operate out of 5 core principles:
1: Assets: Everyone has something to give;
2: Work: Building home and community is real, important work,
3: Reciprocity: Giving is stronger when it’s more than a one-way street,
4: Community: We’re stronger together, and
5: Respect: We deserve it from others – and we owe it to others.
We are making no claims to change anything. What we are doing is setting up a means for people who live in a neighbourhood to come together to tell their personal story. Anybody can throw a party or arrange a pot-luck.. It is the design of this gathering that sets this project apart and makes it a POISA project. The goal of POISA and this project is to develop a model of gathering that educates the participants to the power of Inclusion.
LOOKING FORWARD
From the mid 90’s to 2010, one person’s (Judith Snow) realization that peace can be available through Inclusion has developed into an international collective of projects and activities. We have grown from discussion groups and celebrations into the beginnings of sustainable organization.
For this dream to stay alive, we must continue to put down deep roots into cultures everywhere, especially so that young people will see the opportunity and lend their energy and creativity to the work.
Now is the time for WPIT to emerge as “real”. This will happen as many people join the commitment and the efforts. The question that must be answered now is: “Are you – as an individual or a corporation – are you willing to build World Peace through Inclusion?” If so, please join us in whatever way makes sense to you.
Saturday, October 30, 2010
October 23, 2010
This is for my dearest friend Lorraine. She has been keeping the medical side of this journey on a path of integrity, along with the efforts of my other dear friend Bill Worrel. I’m sure that any quirkiness of the system will be defeated by these two intrepid individuals.
Lorraine has heard me speak of the BMX Model of Inclusion. Today we realized that the thinking behind it may in fact be of some use to her in her public health career. I promised to send her something in writing.
Searching my documents I realized – yet once again – that I have spoken at length and done power point presentations about BMX Inclusion but I have not written anything substantive about it. It’s amazing how much goes on inside my head!
Here’s an excerpt from a draft research proposal:
The BMX Model of Inclusion I propose that three distinct states of Inclusion co-exist. Neither is better than the other, but often there is an emergent pull to move from one state to another. I am calling these states B, M, and X:
State B (Basic): Groups allow the presence of people with diverse characteristics. State B’s principal quality is that the includers share presence with diversity, but no other changes are anticipated or offered. The includers like their community as is, expect no major shifts, and the included are expected to adapt to the ways and means of the includers and to get along as best they can. Typically the included express gratitude for the opportunity and work hard to not cause difficulties.
State M (Mechanical): Includers recognize that the included are struggling to get along, and are willing to make “accommodations”. The included move beyond simply being grateful for the opportunity to coexist and begin to advocate for support. For example, service providers currently tend to segregate individuals with cognitive challenges and the professionalization of supporters tends to turn citizens into helpers and volunteers instead of friends and colleagues.
State X (Crossover): Both includers and the included recognize that another world is possible, one that benefits from the gifts and contributions available in the cultures, characteristics, and experiences of members of both the including and included groups. The perception fades that there are two sides and a distinct boundary.
Operationalizing the BMX Model:
State B (Basic) A teenager with autism and no speech is kept at the back of a regular classroom, with no attention paid to whether he is building friendships.
State M (Mechanical) All teenagers with “disability” labels are given opportunities to be in a homeroom for 1st period. The school has a resource room for tutoring, an “inclusive” lunchroom, and Special Olympics classes to replace regular gym.
State X (Crossover) Ninth grade students are invited to form a support circle with a teen who loves music, and who also has autism and no speech. Twenty-three students respond. They meet regularly and enthusiastically at different points in their day and week for the next four years. The teen who focuses the circle enjoys participating in the school band, gym and many more classes than anyone originally expected. The other teens express their appreciation at having an alternative to being “Nerds”, “Preps” or simply left out. The school administration notes a dramatic decrease in fights and vandalism.
The BMX stages are not only descriptive of the world of ability. I’ve had the good fortune to be part of inclusion conversations involving leaders from other cultural areas where inclusion is an issue, such as non English speaking women immigrating to Toronto, and for Aboriginal peoples who often are viewing their situation as one of chronically dealing with invaders.
A B example is of a Rastafarian man who, as part of his cultural practice continuously wears a hat in public. He was invited to a wedding of a more or less traditional Christian congregation and was told by the ushers upon entering the church building that he would be required to remove his hat. He stepped outside and prepared to wait until the ceremony was over, but in the meantime the ushers gathered together and decided that they can make an exception in his case. One stepped out and invited the man back in requesting only that he wait at the back, and he did so.
The strength of B is that neither the includers nor the included are required to give up their unique identities. Many individuals and groups are quite content with B stage inclusion.
The strength of M inclusion is that it gathers a momentum and an impulse for equality. That is to say that people come to believe that if this situation is good for one person than it must be good for everybody. Large scale, even world wide, changes take place in order to make something about M available to all who fit the appropriate characteristics.
A non ability related example of M is ESL classes. In North America perhaps in the 50’s or thereabouts, some schools discovered that making an effort to intentionally support immigrating students to learn English could lead many of them to take full advantage of public school education as they graduated and/or went into adult education. In a short period of time ESL was offered automatically, even forced upon, students as newcomers to Canada.
However under M one’s personal identity is obliterated in favour of whatever characteristics set you apart. A good friend of mine who is a retired high school teacher told me a story of a brother and sister who had been placed in ESL classes in her school. This was no problem at all for the brother. He progressed in a typical manner through ESL to regular class to graduate in a non academic stream. However, his sister had a dream of becoming a medical doctor. She immediately recognized that a placement in ESL would not get her to an academic level where she would be taken seriously as a potential medical student. Somehow she got the ear of my friend who worked against her own high school staff the get the student out of ESL, some extra support, and placement into the more intensive academic stream. That young student in now a gynaecologist.
There is no question that the M approach to inclusion is powerful and effective. Its tendency to obliterate identity, however, in some respects defeats its fundamental purpose.
And so people long for the X or the crossover approach or stage of inclusion.
Small communities often exhibit creative approaches to differences that become quite stable, especially if nobody makes a big deal of them. In my youth there was very little interchange between groups of different faiths, and yet people worked out the economic strategies that made life easier for each other. For example, the staffing of the convenience stores in town would look something like this: mixed from Monday to Thursday, Christian on Friday, Muslim on Saturday and Jewish on Sunday. Everybody gets his or her appropriate day off for religious celebration and everybody gets to have the stores open all week long. Part of the characteristic of X is that the management of it is invisible. Whereas M is very policy driven X is driven by self interest and on the spot creativity.
Nobody has the energy or the desire to be X all the time. It doesn’t hurt to have some of the basics of life run by policy, and at the B level most of us want to just get on with our day to day life without making issues of things. So clearly a mix of BMX in any individuals or groups experience can be optimized so that inclusion sheds its benefits for all.
And finally, this is where the tendency towards peace making comes in. In any community or any individual’s life an appropriate mix of B, M and X irradiates any need or incentive for strife. In other words as people learn to engage in value creation around diversity they experience a genuine alternative to fear and defensiveness when faced with differences in others.
Lorraine has heard me speak of the BMX Model of Inclusion. Today we realized that the thinking behind it may in fact be of some use to her in her public health career. I promised to send her something in writing.
Searching my documents I realized – yet once again – that I have spoken at length and done power point presentations about BMX Inclusion but I have not written anything substantive about it. It’s amazing how much goes on inside my head!
Here’s an excerpt from a draft research proposal:
The BMX Model of Inclusion I propose that three distinct states of Inclusion co-exist. Neither is better than the other, but often there is an emergent pull to move from one state to another. I am calling these states B, M, and X:
State B (Basic): Groups allow the presence of people with diverse characteristics. State B’s principal quality is that the includers share presence with diversity, but no other changes are anticipated or offered. The includers like their community as is, expect no major shifts, and the included are expected to adapt to the ways and means of the includers and to get along as best they can. Typically the included express gratitude for the opportunity and work hard to not cause difficulties.
State M (Mechanical): Includers recognize that the included are struggling to get along, and are willing to make “accommodations”. The included move beyond simply being grateful for the opportunity to coexist and begin to advocate for support. For example, service providers currently tend to segregate individuals with cognitive challenges and the professionalization of supporters tends to turn citizens into helpers and volunteers instead of friends and colleagues.
State X (Crossover): Both includers and the included recognize that another world is possible, one that benefits from the gifts and contributions available in the cultures, characteristics, and experiences of members of both the including and included groups. The perception fades that there are two sides and a distinct boundary.
Operationalizing the BMX Model:
State B (Basic) A teenager with autism and no speech is kept at the back of a regular classroom, with no attention paid to whether he is building friendships.
State M (Mechanical) All teenagers with “disability” labels are given opportunities to be in a homeroom for 1st period. The school has a resource room for tutoring, an “inclusive” lunchroom, and Special Olympics classes to replace regular gym.
State X (Crossover) Ninth grade students are invited to form a support circle with a teen who loves music, and who also has autism and no speech. Twenty-three students respond. They meet regularly and enthusiastically at different points in their day and week for the next four years. The teen who focuses the circle enjoys participating in the school band, gym and many more classes than anyone originally expected. The other teens express their appreciation at having an alternative to being “Nerds”, “Preps” or simply left out. The school administration notes a dramatic decrease in fights and vandalism.
The BMX stages are not only descriptive of the world of ability. I’ve had the good fortune to be part of inclusion conversations involving leaders from other cultural areas where inclusion is an issue, such as non English speaking women immigrating to Toronto, and for Aboriginal peoples who often are viewing their situation as one of chronically dealing with invaders.
A B example is of a Rastafarian man who, as part of his cultural practice continuously wears a hat in public. He was invited to a wedding of a more or less traditional Christian congregation and was told by the ushers upon entering the church building that he would be required to remove his hat. He stepped outside and prepared to wait until the ceremony was over, but in the meantime the ushers gathered together and decided that they can make an exception in his case. One stepped out and invited the man back in requesting only that he wait at the back, and he did so.
The strength of B is that neither the includers nor the included are required to give up their unique identities. Many individuals and groups are quite content with B stage inclusion.
The strength of M inclusion is that it gathers a momentum and an impulse for equality. That is to say that people come to believe that if this situation is good for one person than it must be good for everybody. Large scale, even world wide, changes take place in order to make something about M available to all who fit the appropriate characteristics.
A non ability related example of M is ESL classes. In North America perhaps in the 50’s or thereabouts, some schools discovered that making an effort to intentionally support immigrating students to learn English could lead many of them to take full advantage of public school education as they graduated and/or went into adult education. In a short period of time ESL was offered automatically, even forced upon, students as newcomers to Canada.
However under M one’s personal identity is obliterated in favour of whatever characteristics set you apart. A good friend of mine who is a retired high school teacher told me a story of a brother and sister who had been placed in ESL classes in her school. This was no problem at all for the brother. He progressed in a typical manner through ESL to regular class to graduate in a non academic stream. However, his sister had a dream of becoming a medical doctor. She immediately recognized that a placement in ESL would not get her to an academic level where she would be taken seriously as a potential medical student. Somehow she got the ear of my friend who worked against her own high school staff the get the student out of ESL, some extra support, and placement into the more intensive academic stream. That young student in now a gynaecologist.
There is no question that the M approach to inclusion is powerful and effective. Its tendency to obliterate identity, however, in some respects defeats its fundamental purpose.
And so people long for the X or the crossover approach or stage of inclusion.
Small communities often exhibit creative approaches to differences that become quite stable, especially if nobody makes a big deal of them. In my youth there was very little interchange between groups of different faiths, and yet people worked out the economic strategies that made life easier for each other. For example, the staffing of the convenience stores in town would look something like this: mixed from Monday to Thursday, Christian on Friday, Muslim on Saturday and Jewish on Sunday. Everybody gets his or her appropriate day off for religious celebration and everybody gets to have the stores open all week long. Part of the characteristic of X is that the management of it is invisible. Whereas M is very policy driven X is driven by self interest and on the spot creativity.
Nobody has the energy or the desire to be X all the time. It doesn’t hurt to have some of the basics of life run by policy, and at the B level most of us want to just get on with our day to day life without making issues of things. So clearly a mix of BMX in any individuals or groups experience can be optimized so that inclusion sheds its benefits for all.
And finally, this is where the tendency towards peace making comes in. In any community or any individual’s life an appropriate mix of B, M and X irradiates any need or incentive for strife. In other words as people learn to engage in value creation around diversity they experience a genuine alternative to fear and defensiveness when faced with differences in others.
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